AGSD!

The Association for Glycogen Storage Disease(UK) was founded in 1986. The purpose of the association shall be to organise a volunary support group for all persons affected with some form of Glycogen Storage Disease (GSD) and their families. The Primary Purpose of the Association is to act as a family contact and support group for all persons affected by some form of GSD and their families. The Secondary Purposes are to:
Protect and promote the best interests of all persons affected with GSD. Act as a vehicle of communication on GSD related matters and to publish and distrinute such material to all members of the association (but not necessarily restricted to members of the association). Contribute towards trabvel and accomodation expenses associated with the Annual General Meeting of the AGSD (UK) for those otherwise not ale to attend the AGM. Encourage the improvement of facilities for the treatment, study education, shelter, recuperation and other general benefits to GSD affected persons. Act as a focus for educational, scientific and charitable activities related to the disease. Contact and help organise other such groups wherever and whenever the need arises throughout the world for the purposes stated in 1 and 2.

Contact Details: Novotel Bradford 6 Roydsdale Way Bradford BD4 6SA United Kingdom Tel: 01274 683 683 Fax: 01274 651 342 Email: support@butterfly-net.co.uk WWW: www.agsd.org.uk/

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Recent Publications by AGSD!:
More questions: 10 years later from glycogen storage disease patient support groups in Europe. In 1990 the first Fulda Workshop on Glycogen Storage Disease (GSD) type I...	22nd February, 2003	Association for Glycogen Storage Disease (UK), 9 Lindop Road, Hale,	Eur J Pediatr. 2002 Oct;161 Suppl 1:S102-5. Epub 2002 Sep 4. DOI Direct Link

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