ORPHANET

Contact Details: 20 rue le regrattier PARIS Cedex 15 F-75004 France Tel: 33145595240 Fax: Email: sheilman@infobiogen.fr WWW: www.orpha.net/

Recent Publications by ORPHANET:
Empowerment of patients: lessons from the rare diseases community. Sodium oxybate (Xyrem; gamma-hydroxybutyrate) oral solution was recently...	27th June, 2008		Lancet. 2008 Jun 14;371(9629):2048-51. DOI Direct Link
Networking for rare diseases: a necessity for Europe. Most rare diseases are life-threatening and chronically debilitating...	20th February, 2008	Inserm,	Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2007 DOI Direct Link
Endocrine involvement in pediatric-onset Langerhans' cell histiocytosis: a population-based study. OBJECTIVE: To document the frequency and outcome of endocrine involvement...	16th April, 2004	Service d'Hemato-Oncologie Pediatrique, Hopital Trousseau and Orphanet,	J Pediatr. 2004 Mar;144(3):344-50. DOI Direct Link

BioNews Results for ORPHANET:
Ascorbic acid in Charcot-Marie-Tooth disease	Lancet:  Oct 7 2009 11:10PM Matching: orphanet

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