EURORDIS European Organisation for Rare Diseases Company Profile
News Articles
EURORDIS (The European Organisation for Rare Diseases) announced today that Celgene Corporation (NASDAQ:CELG) has been awarded the prestigious EURORDIS Company Award for excellence in the field of...
EURORDIS honours Genzyme with rare disease company award
With Rare Disease Day tomorrow, its coordinator EURORDIS has honoured Sanofi’s Genzyme with the highly acclaimed Company Award for its rare disease accomplishments. The largest European rare diseas...
Yann Le Cam, Chief Executive Officer, EURORDIS, presented at World Orphan Drug Congress USA last year on the topic, ‘The EU integrated rare diseases treatment [...]
Yann Le Cam, Chief Executive Officer, EURORDIS, presented at World Orphan Drug Congress USA earlier this year on the topic, ‘The EU integrated rare diseases [...]
Genzyme receives company award from European Organisation for Rare Diseases
Sanofi and its subsidiary Genzyme announced today that Genzyme has received a Company Award from EURORDIS...
Genzyme Receives Company Award from European Organisation for Rare Diseases (EURORDIS)
Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), announced today that it has received a Company Award from EURORDIS, the largest European patient organization in th...
Prosensa receives rare disease 'Company Award' from EURORDIS
Prosensa received the ‘Company Award’ at the EURORDIS Black Pearl Gala Dinner in Brussels. The Black Pearl Gala Dinner is hosted annually by EURORDIS, a non-governmental alliance of patients and p...
Rare Diseases: we are 30 milllion in Europe. Each of us is a real person
I thought I’d post up this quite inspirational video from http://www.eurordis.org. If you’re interested in hearing more about orphan drugs and rare diseases, you might [...]
Drugs and Medications
These highlights do not include all the information needed to use FARESTON® safely and effectively. See full prescribing information for FARESTON®.FARESTON® (toremifene citrate) 60 mg Tablets oral...
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Drug Fact
PubMed Articles
Awakening Australia to Rare Diseases: Symposium report and preliminary outcomes.
ABSTRACT: Western Australia recently hosted Australia's inaugural national rare disease symposium, entitled Awakening Australia to Rare Diseases: Global perspectives on establishing a coordinated appr...
From Molecules to Behavior: Lessons from the Study of Rare Genetic Disorders.
Rare diseases are defined as conditions with a prevalence of less than 1/2,000. To date between 6,000 and 7,000 rare diseases have been identified and many of those have manifestations that include in...
Animal models for metabolic, neuromuscular and ophthalmological rare diseases.
Animal models are important tools in the discovery and development of treatments for rare diseases, particularly given the small populations of patients in which to evaluate therapeutic candidates. He...
It is stated that in this century not only the societies, but also the communities have to confront with a reconstruction process due to the rapid developments and reformations. It is believed that it...
Less than 1% of cancer occurs in children. With the progress made by national and international cooperative groups 75% of them are actually cured. However some entities have an incidence so weak that...
Clinical Trials
Nephrotic Syndrome Study Network
Minimal change disease (MCD), focal segmental glomerulosclerosis (FSGS), and Membranous nephropathy (MN), generate an enormous individual and societal financial burden, accounting for appr...
Identifying Characteristics of Bone Marrow Failure Syndromes
Bone marrow failure syndromes (BMFS) are rare disorders characterized by dysfunctional hematopoietic stem cells, which give rise to all red and white blood cells. The deficiency of blood c...
European Active Surveillance Study (EURAS)
EURAS is a multi-national, controlled, prospective, post-marketing, non-intervention cohort study of new users of drospirenone/ethinylestradiol (DRSP/EE), levonorgestrel/ethinylestradiol (...
Pan-European Survey on the Under Treatment of Hypercholesterolemia
The survey try to establish the proportion of patients on lipid-lowering pharmacological treatment reaching the LDL-C goals according to the Third Joint European Task Force guidelines, ove...
Utilisation of Angiox® in European Practice
The objective of this study is to determine utilisation patterns in patients receiving Angiox® in participating European centres. Additionally, through the collection of descriptive safet...
Companies
EURORDIS European Organisation for Rare Diseases
European Plant Science Organisation
EPSO, the European Plant Science Organisation, is an independent body that represents more than 50 leading Research Institutions from 23 European countries. EPSO wants to improve impact and visibility...
Founded in 1999, OPi is a European integrated biopharmaceutical company whose mission is to develop and market pharmaceuticals (small molecules and biologicals) aimed at treating patients suffering fr...
Lundbeck Inc. was established in March 2009 following the acquisition of Ovation Pharmaceuticals, Inc. by Lundbeck and has proven success in developing and commercializing high-ne...
National Organization for Rare Disorders
Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...
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We have published hundreds of EURORDIS European Organisation for Rare Diseases news stories on BioPortfolio along with dozens of EURORDIS European Organisation for Rare Diseases Clinical Trials and PubMed Articles about EURORDIS European Organisation for Rare Diseases for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of EURORDIS European Organisation for Rare Diseases Companies in our database. You can also find out about relevant EURORDIS European Organisation for Rare Diseases Drugs and Medications on this site too.
