Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices.
Summary of "Decision-making for gastrostomy and ventilatory support for people with motor neurone disease: variations across UK hospices."
Interventions, such as the use of percutaneous endoscopic gastrostomy (PEG) and non-invasive ventilation (NIV), are used in the management of people with motor neurone disease with the aim of improving quality of life and relieving symptoms. However, the number of people receiving these interventions varies across the UK. This study has looked at the involvement and knowledge of consultants, within specialist palliative care services, with these procedures, to ascertain if there were differences in attitudes to their use. Twenty-two consultants took part in a telephone audit. There appeared to be great variation in their involvement in and knowledge of the use of these interventions. The majority of services were involved in the care of people with MND, but often only in the terminal stages. There appears to be a need for the wider application of guidelines on the use of PEG and NIV, as well as the development of a collaborative approach with other services, including neurology and rehabilitation services.
University of Kent, and Wisdom Hospice, High Bank, Rochester, Kent, UK ME1 2NU. firstname.lastname@example.org
This article was published in the following journal.
Name: Journal of palliative care
Medical and Biotech [MESH] Definitions
Decision Support Techniques
Mathematical or statistical procedures used as aids in making a decision. They are frequently used in medical decision-making.
Decision Support Systems, Clinical
Computer-based information systems used to integrate clinical and patient information and provide support for decision-making in patient care.
Decision Making, Computer-assisted
Use of an interactive computer system designed to assist the physician or other health professional in choosing between certain relationships or variables for the purpose of making a diagnostic or therapeutic decision.
A system of government in which there is free and equal participation by the people in the political decision-making process.
The process of making a selective intellectual judgment when presented with several complex alternatives consisting of several variables, and usually defining a course of action or an idea.
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