Decision influences and aftermath: parents, stillbirth and autopsy.
Summary of "Decision influences and aftermath: parents, stillbirth and autopsy."
Backgroundâ€‚ Stillbirth, among the most distressing experiences an adult may face, is also a time when parents must decide whether an autopsy or other post-mortem examinations will be performed on their infant. Autopsies can reveal information that might help explain stillbirth, yet little is known about how people make this difficult decision. Objectivesâ€‚ This study examines the influences on decisions about autopsy after stillbirth among Australian parents. Designâ€‚ The study involved secondary analysis of transcripts of three focus groups using qualitative content analysis. Participants and settingâ€‚ Seventeen parents of 14 stillborn babies participated in consultations around the revision of a perinatal mortality audit guideline. Resultsâ€‚ Parents shared the decision making. Four decision drivers were identified: parents' preparedness or readiness to make decisions; parental responsibility; concern for possible consequences of an autopsy and the role of health professionals. Each decision driver involved reasons both for and against autopsy. Two decision aftermath were also present: some parents who agreed to an autopsy were dissatisfied with the way the autopsy results were given to them and some parents who did not have an autopsy for their infant expressed some form of regret or uncertainty about the choice they made. Conclusionsâ€‚ To make decisions about autopsy after stillbirth, parents need factual information about autopsy procedures, recognition that there might be fear of blame, an environment of trust, and health services and professionals prepared and skilled for difficult conversations.
Research Fellow, Research Education and Development Unit, La Trobe University, Melbourne, Vic. Associate Professor, Mater Medical Research Institute, University of Queensland, Brisbane, Qld State Coordinator, SANDS Queensland, Brisbane, Qld Founder and Di
This article was published in the following journal.
Name: Health expectations : an international journal of public participation in health care and health policy
- PubMed Source: http://www.ncbi.nlm.nih.gov/pubmed/22708659
- DOI: http://dx.doi.org/10.1111/j.1369-7625.2012.00782.x
Medical and Biotech [MESH] Definitions
A graphic device used in decision analysis, series of decision options are represented as branches (hierarchical).
Decision Support Techniques
Mathematical or statistical procedures used as aids in making a decision. They are frequently used in medical decision-making.
Persons functioning as natural, adoptive, or substitute parents. The heading includes the concept of parenthood as well as preparation for becoming a parent.
Child Of Impaired Parents
Child with one or more parents afflicted by a physical or mental disorder.
A subdiscipline of human genetics which entails the reliable prediction of certain human disorders as a function of the lineage and/or genetic makeup of an individual or of any two parents or potential parents.
OBJECTIVES: To define the characteristics of placental stillbirth and the possible contribution of thrombophilic risk factors. STUDY DESIGN: A prospective cohort study was performed. Women diagnosed w...
Knowledge of stillbirth recurrence risk is of clinical interest and may give etiological insight. The authors studied "gestational age-" and "weight-by-gestation-specific" stillbirth recurrence, and e...
Objectivesâ€‚ To describe specific causes of the high rates of stillbirth, neonatal death and early child childhood death in Zambia. Methodsâ€‚ We conducted a household-based survey in rural Zambia. S...
American parents of chronically ill children prefer to be involved in decision making about their ill child's end of life care. Parents trust the clinicians involved with their ill child to make reaso...
Objective: Our objective was to describe how parents consider disease and test characteristics when making decisions about newborn screening. Methods: We conducted focus groups with parents from prima...
The aim of the study is to compare findings generated by computertomography-based autopsy (Virtopsy) with conventional autopsy and clinical diagnoses. Therefore all patients dying while re...
The primary purpose of this study is to pilot test an instrument that the investigators will develop to assess decision influences on inflammatory bowel disease patients' medication adhere...
Parents need understandable information in order to make appropriate choices for their child's health care. This is especially true when making decisions about invasive medical procedures....
The NICHD Global Network (GN) for Women's and Children's Health Research, a multi-site, international research network, provides a unique infrastructure to implement an expanded perinatal...
The project utilize experience and knowledge gained from previous early childhood projects in NYC post 9/11 and Sderot. The overall goals are: 1. Identifying young children (under 6 y...