Patient and provider views on the use of medical services by women with intellectual disabilities.
Summary of "Patient and provider views on the use of medical services by women with intellectual disabilities."
Background  People with intellectual disabilities (ID) receive primary care in community-based practices and are encouraged to participate in the physician-patient relationship. However, the nature of this participation is not known. Methods  Qualitative data were analysed to obtain perspectives from patients and providers regarding clinic visits. Patient participants were recruited from community organisations, while physician participants were recruited from emails and phone calls to local and regional practices and a national and regional list serve. Analysis methods derived from grounded theory were used. Results  Twenty-seven women with ID and 22 family physicians were interviewed. Themes important to both groups included time, how the support worker should be used in the encounter and the nature of the physician-patient relationship. Patients expressed frustration at how little time they spent with their physician, and wished that physicians would speak directly to them instead of to their support worker. Physicians felt that patients with ID took too much time, and said that they preferred communicating with the support worker. The interviews also revealed unconscious biases about people with ID. Conclusions  Patient participation is encouraged for people with ID, but is limited because of both physician and patient factors. Greater awareness of these factors may improve care for patients with ID.
Affiliation
Family Medicine, Boston University School of Medicine, Boston, MA, USA Community Health Sciences, Boston University School of Public Health, Boston, MA, USA Health Policy and Management, Boston University School of Public Health, Boston, MA, USA.
Journal Details
This article was published in the following journal.
Name: Journal of intellectual disability research : JIDR
ISSN: 1365-2788
Pages:
Links
- PubMed Source: http://www.ncbi.nlm.nih.gov/pubmed/22974084
- DOI: http://dx.doi.org/10.1111/j.1365-2788.2012.01606.x
Medical and Biotech [MESH] Definitions
Capitation Fee
A method of payment for health services in which an individual or institutional provider is paid a fixed, per capita amount without regard to the actual number or nature of services provided to each patient.
Patient Freedom Of Choice Laws
Laws requiring patients under managed care programs to receive services from the physician or other provider of their choice. Any willing provider laws take many different forms, but they typically prohibit managed-care organizations from having a closed panel of physicians, hospitals, or other providers.
Fees, Medical
Amounts charged to the patient as payer for medical services.
Women's Health Services
Organized services to provide health care to women. It excludes maternal care services for which MATERNAL HEALTH SERVICES is available.
Ancillary Services, Hospital
Those support services other than room, board, and medical and nursing services that are provided to hospital patients in the course of care. They include such services as laboratory, radiology, pharmacy, and physical therapy services.
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