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Prospective Data Registry of an Interdisciplinary Pelvic Pain & Endometriosis Clinic

2016-09-22 21:08:21 | BioPortfolio

Summary

The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.

Description

The BC Women's Centre for Pelvic Pain and Endometriosis is the tertiary referral centre for endometriosis/pelvic pain in British Columbia, Canada. The Centre offers a unique interdisciplinary approach including minimally invasive surgery, hormonal and other medical therapy, pain education, physiotherapy, and CBT/mindfulness.

After informed consent, patients prospectively consent to data collection in the online registry. The registry consists of patient intake questionnaires (including validated measures), physical and ultrasound examination, review of medical records, surgical findings, and annual outcomes to 5 years.

The online data registry is housed in the Research Electronic Data Capture (REDCap) platform located at BC Children's Hospital.

Study Design

Observational Model: Cohort, Time Perspective: Prospective

Conditions

Endometriosis

Intervention

Data Registry

Location

BC Women's Hospital & Health Centre
Vancouver
British Columbia
Canada
V6H 3N1

Status

Enrolling by invitation

Source

BC Women's Hospital & Health Centre

Results (where available)

View Results

Links

Published on BioPortfolio: 2016-09-22T21:08:21-0400

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Medical and Biotech [MESH] Definitions

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