Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome
Summary
Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention
Study Design
Observational Model: Case-Only, Time Perspective: Retrospective
Conditions
Prader-Willi Syndrome
Intervention
counseling, emotional support, emotional support, emotional support
Location
Taichung Veterans General Hospital
Taichung
Taiwan
40707
Status
Not yet recruiting
Source
Taichung Veterans General Hospital
Results (where available)
Links
- Source: http://clinicaltrials.gov/show/NCT00808548
- Information obtained from ClinicalTrials.gov on July 15, 2010
Medical and Biotech [MESH] Definitions
Social Support
Support systems that provide assistance and encouragement to individuals with physical or emotional disabilities in order that they may better cope. Informal social support is usually provided by friends, relatives, or peers, while formal assistance is provided by churches, groups, etc.
Doulas
Trained lay women who provide emotional support during obstetric labor and the postpartum period for mothers and their partners.
Emotional Intelligence
The ability to understand and manage emotions and to use emotional knowledge to enhance thought and deal effectively with tasks. Components of emotional intelligence include empathy, self-motivation, self-awareness, self-regulation, and social skill. Emotional intelligence is a measurement of one's ability to socialize or relate to others.
Group Homes
Housing for groups of patients, children, or others who need or desire emotional or physical support. They are usually established as planned, single housekeeping units in residential dwellings that provide care and supervision for small groups of residents, who, although unrelated, live together as a family.
Schizophrenia
A severe emotional disorder of psychotic depth characteristically marked by a retreat from reality with delusion formation, HALLUCINATIONS, emotional disharmony, and regressive behavior.
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