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Information Centre for Rare Diseases and Orphan Drugs Company Profile

04:51 EDT 19th June 2018 | BioPortfolio

Information Centre for Rare Diseases and Orphan Drugs (ICRDOD) is a free educational and information service in Bulgarian and English languages, providing personalized replies to requests from patients, families and medical professionals.
Any medical or health information, provided and hosted on this site is given by medically trained and qualified professionals. The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her doctor. Confidentiality of data relating to individual patients and visitors to ICRDOD, including their identity, is respected by this website. We undertake to honour or exceed the legal requirements of medical/health information privacy that apply in Bulgaria.

ICRDOD is a project and activity of the Bulgarian Association for Promotion of Education and Science (BAPES) - a non-government non-profit organization, registered under the Bulgarian law on legal persons with non-profit purposes in 2003. For the realization of this website, BAPES utilizes its own funding, received from private donors. The director and all consultants of ICRDOD are contributing on volunteer basis.

Location

4 Bratia Svestarovi str.
Plovdiv
4017
Bulgaria

Contact

Phone: 359-897-858870
Email: info@raredis.org


News Articles [3615 Associated News Articles listed on BioPortfolio]

FDA chief says he’s open to rethinking incentives on orphan drugs

The Orphan Drug Act has created lots drugs for rare diseases. But, Scott Gottlieb says, the times may be changing.

Orphan medicine policies in 24 European countries

Drugs known as “orphan” drugs are those used to treat rare disease.  However, how “rare” is rare disease?  In Europe, a rare disease is one affecting 5 or fewer people per 10...

NORD Launches RareInsights, New Initiative to Support Data-Driven Advocacy, and Presents 5 Myths About Orphan Drugs and the Orphan Drug Act

Washington, D.C., May 30, 2018—The National Organization for Rare Disorders (NORD) today launched RareInsights™, its new initiative to expand public knowledge of rare diseases and translate that k...

Save the Date for NORD’s 2018 Rare Summit

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the...

S. Korean drug manufacturers eye rare diseases

South Korean pharmaceutical companies are focusing on bringing drugs for rare diseases to the US and have received orphan dru -More- 

Pharma groups spy opportunity in rare diseases

Worldwide sales of orphan drugs are forecast to total $262bn by 2026

Drugs for rare diseases will help propel pharma sales to $1.2trn by 2024; report

Orphan drug sales growth will be 11%+ a year

Information is Key to Tackling Rare Diseases

ArticleNIH's Genetic and Rare Diseases Information Center provides up-to-date, easy-to-understand information about rare and genetic disease.Contributed Author: 

PubMed Articles [5810 Associated PubMed Articles listed on BioPortfolio]

Orphan drugs: trends and issues in drug development.

Research in rare diseases has contributed substantially toward the current understanding in the pathophysiology of the common diseases. However, medical needs of patients with rare diseases have alway...

Comparative oncology approach to drug repurposing in osteosarcoma.

Osteosarcoma is an orphan disease for which little improvement in survival has been made since the late 1980s. New drug discovery for orphan diseases is limited by the cost and time it takes to develo...

Rare vascular diseases, building dedicated multidisciplinary specialized center.

Rare Vascular Diseases (RVD) encompass different types of vessel involvement. Some cause a dilation, others a weakening or tortuosity of the arterial wall, others an obstruction or excessive calcifica...

Oral Health-Related Quality of Life in Rare Diseases with Oral Manifestations.

In 2013 the German Ministry of Health initiated a "National Plan of Action for People with Rare Diseases" (NAMSE), in order to improve medical treatment for people with rare diseases. The aim of NAMSE...

A checklist for managed access programmes for reimbursement co-designed by Canadian patients and caregivers.

Reimbursement decisions on orphan drugs carry significant uncertainty, and as the amount increases, so does the risk of making a wrong decision, where harms outweigh benefits. Consequently, patients o...

Clinical Trials [7374 Associated Clinical Trials listed on BioPortfolio]

Diagnostic Research in Patients With Rare Diseases - Solving the Unsolved Rare Diseases

The DiRiP study will enroll patients (n = 3500) with unclear rare diseases and suspected genetic reasons. In group 1 (n = 500) subjects are clinically characterized in the context of outpa...

Finding Genes for Rare Diseases

This study will help the investigator understand the pathogenesis of different rare genetic conditions and to establish database of rare genetic databases. This would ultimately help to pr...

Gene Discovery Core, The Manton Center

The Gene Discovery Core at The Manton Center for Orphan Disease Research based at Boston Children's Hospital studies families with rare, poorly understood or undiagnosed, but suspected gen...

The LD Lync Study - Natural History Study of Genetic Lipodystrophy Syndromes

Genetic lipodystrophy syndromes are extremely rare, orphan diseases with overall estimated prevalence of less than 2,000 in the United States. These rare disorders characterized by selecti...

Kidney Information Network for Disease Research and Education

In this study, we will conduct a prospective cohort study of dialysis patients by collecting research-quality information on patient characteristics, comorbid diseases and laboratory marke...

Companies [2917 Associated Companies listed on BioPortfolio]

Information Centre for Rare Diseases and Orphan Drugs

Information Centre for Rare Diseases and Orphan Drugs (ICRDOD) is a free educational and information service in Bulgarian and English languages, providing personalized replies to requests from patient...

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

AOP Orphan Pharmaceuticals AG

AOP Orphan is a multinational company with headquarters in Vienna, Austria, focusing on clinical research, development and distribution of medicines for rare and complex diseases....

Rare Disease Communications

Rare Disease Communications® is a healthcare communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orph...

Rare Disease Communications®

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orp...

More Information about "Information Centre for Rare Diseases and Orphan Drugs" on BioPortfolio

We have published hundreds of Information Centre for Rare Diseases and Orphan Drugs news stories on BioPortfolio along with dozens of Information Centre for Rare Diseases and Orphan Drugs Clinical Trials and PubMed Articles about Information Centre for Rare Diseases and Orphan Drugs for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Information Centre for Rare Diseases and Orphan Drugs Companies in our database. You can also find out about relevant Information Centre for Rare Diseases and Orphan Drugs Drugs and Medications on this site too.

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