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National Organization for Rare Disorders Company Profile

16:18 EST 13th December 2018 | BioPortfolio

Mission Statement
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. What is A Rare Disorder?
A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. One in every 10 individuals in this country has received a diagnosis of a rare disease. For almost twenty years, NORD has served as the primary non-governmental clearinghouse for information on rare disorders. NORD also provides referrals support groups and other sources of assistance.

Location

55 Kenosia AvenuePO Box 1968
Danbury
Connecticut
06813-1968
United States of America

Contact

Phone: (203) 744-0100
Fax: (203)798-2291
Email: orphan@rarediseases.org


News Articles [1900 Associated News Articles listed on BioPortfolio]

NORD Announces Ten New Rare Disease Registries, Thanks to Multi-Year Grant from Shire

Washington, D.C., September 11, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has...

NORD Receives Grant from Anthem Foundation for Expansion of Rare Disease Database®

Washington, D.C., September 25, 2018 – The National Organization for Rare Disorders (NORD) announced today it is enhancing its Rare Disease Database which serves as a valuable source of information ...

2018 NORD Rare Summit to Feature Distinguished Speakers Discussing a New Era of Patient-Focused Innovation

Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, ...

NORD Issues Statement on the Passing of Dr. Robert M. Campbell

Washington, D.C., August 6, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issue...

Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, ...

NORD Issues Statement on Increasing Use of CoPay Accumulator Programs in Health Plans

Washington, D.C., June, 4, 2018 —The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued ...

Five Years of Patient Registry Success: NORD’s IAMRARE™ Registry Program Celebrates New Partnerships and Models of Engagement  

Washington, D.C., October 3, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today ...

NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients

Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Diseases (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare ...

PubMed Articles [3809 Associated PubMed Articles listed on BioPortfolio]

Glycomics in rare diseases: from diagnosis to mechanism.

The National Institutes of Health (NIH) Undiagnosed Diseases Program (UDP) studies rare genetic disorders not only to achieve diagnoses, but to understand human biology. To ascertain the contribution ...

The burden of musculoskeletal disorders in Mexico at national and state level, 1990-2016: estimates from the global burden of disease study 2016.

Worldwide, musculoskeletal (MSK) disorders are the second cause of living with disability. According to our data, in Mexico, MSK conditions are an important cause of disability, at national and state ...

The Organization of Stomatological Care to Patients with Various Somatic Pathology.

The article considers actual national and international publications concerning problems of organization and characteristics of stomatological care support of patients with particular types of somatic...

Prevalence of mental disorders in Punjab: Findings from National Mental Health Survey.

Knowledge of the prevalence of mental disorders is essential for setting up services and allocation of resources. Existing studies suffer from methodological problems which limit their utility and gen...

Urea cycle disorders in India: clinical course, biochemical and genetic investigations, and prenatal testing.

Urea cycle disorders (UCDs) are inherited metabolic disorders that present with hyperammonemia, and cause significant mortality and morbidity in infants and children. These disorders are not well repo...

Clinical Trials [5123 Associated Clinical Trials listed on BioPortfolio]

Longitudinal Study of Neurodegenerative Disorders

The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the ...

Evaluation of a New Regional Organization to Promote Access to Renal Transplantation

Patients with terminal chronic kidney disease (CRD) need renal function supplementation, namely dialysis or renal transplantation. Transplantation is the most efficient and cost-effective ...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

French National Database of Rare Dermatological Cancers

Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, and cutaneous adnexal carcinomas are 3 types of rare skin cancers for which much remains unknown in terms...

Study to Compare Strategies to Improve Detection of Nutritional Disorders in Hospitalized Adults (Compass Project)

The prevalence of malnutrition in hospital is very high (30 percent) with major consequences in terms of morbidity and mortality, generating significant health care costs. The positive imp...

Companies [2524 Associated Companies listed on BioPortfolio]

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Biotechnology Industry Organization (BIO) and National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD), established in 1983, is the leading, independent nonprofit organization dedicated to helping all patients and families affecte...

National Organization for Rare Disorders (NORD)

Lundbeck Inc.

Lundbeck Inc. was established in March 2009 following the acquisition of Ovation Pharmaceuticals, Inc. by Lundbeck and has proven success in developing and commercializing high-ne...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "National Organization for Rare Disorders" on BioPortfolio

We have published hundreds of National Organization for Rare Disorders news stories on BioPortfolio along with dozens of National Organization for Rare Disorders Clinical Trials and PubMed Articles about National Organization for Rare Disorders for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of National Organization for Rare Disorders Companies in our database. You can also find out about relevant National Organization for Rare Disorders Drugs and Medications on this site too.

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