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National Organization for Rare Disorders Company Profile

21:47 EDT 19th June 2018 | BioPortfolio

Mission Statement
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. What is A Rare Disorder?
A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. One in every 10 individuals in this country has received a diagnosis of a rare disease. For almost twenty years, NORD has served as the primary non-governmental clearinghouse for information on rare disorders. NORD also provides referrals support groups and other sources of assistance.

Location

55 Kenosia AvenuePO Box 1968
Danbury
Connecticut
06813-1968
United States of America

Contact

Phone: (203) 744-0100
Fax: (203)798-2291
Email: orphan@rarediseases.org


News Articles [1816 Associated News Articles listed on BioPortfolio]

National Organization for Rare Disorders (NORD) Announces Honorees for 2018 Rare Impact Awards

Washington, D.C., March 21, 2018—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 35th Anniversary Celebration...

New Research Funding Opportunities Available from NORD

All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018   Washington, D.C., May 24, 2018 – The National Organization for Rare Di...

NORD Issues Statement Regarding House Vote on Right to Try

Washington, D.C., March 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, r...

NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)

Washington, D.C., May 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued...

Neurology Reviews® and NORD Publish the 2018 Rare Neurological Disease Special Report

  Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare D...

NORD Issues Statement Regarding Governor Bevin’s Veto of Kentucky Senate Bill 7

Washington, D.C., April 11, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, rele...

NORD Issues Statement on Increasing Use of CoPay Accumulator Programs in Health Plans

Washington, D.C., June, 4, 2018 —The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued ...

NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients

Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Diseases (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare ...

PubMed Articles [3694 Associated PubMed Articles listed on BioPortfolio]

An overview of the impact of rare disease characteristics on research methodology.

About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare ...

Early Recognition and Management of Rare Kidney Stone Disorders.

Kidney stones, especially those that present in childhood/adolescence, may be due to rare inherited disorders such as cystinuria. Early recognition and prompt treatment can help reduce or even prevent...

The Italian National Rare Diseases Registry: a model of comparison and integration with Hospital Discharge Data.

Italy has been the first country at European level to implement a population-based public health registry dedicated to rare diseases. This study describes the current situation of the Italian National...

Dissecting disease entities out of the broad spectrum of bipolar-disorders.

The etiopathology of bipolar disorders is yet unraveled and new avenues should be pursued. One such avenue may be based on the assumption that the bipolar broad spectrum includes, among others, an arr...

Could Proteomics Become a Future Useful Tool to Shed Light on the Mechanisms of Rare Neurodegenerative Disorders?

Very often the clinical features of rare neurodegenerative disorders overlap with those of other, more common clinical disturbances. As a consequence, not only the true incidence of these disorders is...

Clinical Trials [4576 Associated Clinical Trials listed on BioPortfolio]

Longitudinal Study of Neurodegenerative Disorders

The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the ...

Evaluation of a New Regional Organization to Promote Access to Renal Transplantation

Patients with terminal chronic kidney disease (CRD) need renal function supplementation, namely dialysis or renal transplantation. Transplantation is the most efficient and cost-effective ...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

French National Database of Rare Dermatological Cancers

Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, and cutaneous adnexal carcinomas are 3 types of rare skin cancers for which much remains unknown in terms...

Study to Compare Strategies to Improve Detection of Nutritional Disorders in Hospitalized Adults (Compass Project)

The prevalence of malnutrition in hospital is very high (30 percent) with major consequences in terms of morbidity and mortality, generating significant health care costs. The positive imp...

Companies [2451 Associated Companies listed on BioPortfolio]

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Biotechnology Industry Organization (BIO) and National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD), established in 1983, is the leading, independent nonprofit organization dedicated to helping all patients and families affecte...

National Organization for Rare Disorders (NORD)

Lundbeck Inc.

Lundbeck Inc. was established in March 2009 following the acquisition of Ovation Pharmaceuticals, Inc. by Lundbeck and has proven success in developing and commercializing high-ne...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "National Organization for Rare Disorders" on BioPortfolio

We have published hundreds of National Organization for Rare Disorders news stories on BioPortfolio along with dozens of National Organization for Rare Disorders Clinical Trials and PubMed Articles about National Organization for Rare Disorders for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of National Organization for Rare Disorders Companies in our database. You can also find out about relevant National Organization for Rare Disorders Drugs and Medications on this site too.

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