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National Organization for Rare Disorders Company Profile

04:00 EDT 22nd September 2018 | BioPortfolio

Mission Statement
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. What is A Rare Disorder?
A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. One in every 10 individuals in this country has received a diagnosis of a rare disease. For almost twenty years, NORD has served as the primary non-governmental clearinghouse for information on rare disorders. NORD also provides referrals support groups and other sources of assistance.

Location

55 Kenosia AvenuePO Box 1968
Danbury
Connecticut
06813-1968
United States of America

Contact

Phone: (203) 744-0100
Fax: (203)798-2291
Email: orphan@rarediseases.org


News Articles [1847 Associated News Articles listed on BioPortfolio]

National Organization for Rare Disorders (NORD) Announces Honorees for 2018 Rare Impact Awards

Washington, D.C., March 21, 2018—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 35th Anniversary Celebration...

New Research Funding Opportunities Available from NORD

All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018   Washington, D.C., May 24, 2018 – The National Organization for Rare Di...

NORD Announces Ten New Rare Disease Registries, Thanks to Multi-Year Grant from Shire

Washington, D.C., September 11, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has...

2018 NORD Rare Summit to Feature Distinguished Speakers Discussing a New Era of Patient-Focused Innovation

Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, ...

NORD Issues Statement Regarding House Vote on Right to Try

Washington, D.C., March 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, r...

NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)

Washington, D.C., May 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued...

NORD Issues Statement on the Passing of Dr. Robert M. Campbell

Washington, D.C., August 6, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issue...

Neurology Reviews® and NORD Publish the 2018 Rare Neurological Disease Special Report

  Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare D...

PubMed Articles [3777 Associated PubMed Articles listed on BioPortfolio]

Could Proteomics Become a Future Useful Tool to Shed Light on the Mechanisms of Rare Neurodegenerative Disorders?

Very often the clinical features of rare neurodegenerative disorders overlap with those of other, more common clinical disturbances. As a consequence, not only the true incidence of these disorders is...

The Organization of Stomatological Care to Patients with Various Somatic Pathology.

The article considers actual national and international publications concerning problems of organization and characteristics of stomatological care support of patients with particular types of somatic...

Prevalence of mental disorders in Punjab: Findings from National Mental Health Survey.

Knowledge of the prevalence of mental disorders is essential for setting up services and allocation of resources. Existing studies suffer from methodological problems which limit their utility and gen...

A perinatal approach to genetic disorders in Irish Travellers: A review.

Irish Travellers are an endogamous nomadic ethnic minority population mostly resident on the island of Ireland with smaller populations living in Europe & USA. As they practice consanguinity, rare and...

Relationship Between Accountable Care Organization Status and 30-Day Hospital-wide Readmissions. Are All Accountable Care Organizations Created Equal?

We compare hospital readmission rates by accountable care organization (ACO) status with national readmission averages, to determine whether ACO affiliation influences 30-day hospital-wide readmission...

Clinical Trials [4872 Associated Clinical Trials listed on BioPortfolio]

Longitudinal Study of Neurodegenerative Disorders

The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the ...

Evaluation of a New Regional Organization to Promote Access to Renal Transplantation

Patients with terminal chronic kidney disease (CRD) need renal function supplementation, namely dialysis or renal transplantation. Transplantation is the most efficient and cost-effective ...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

French National Database of Rare Dermatological Cancers

Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, and cutaneous adnexal carcinomas are 3 types of rare skin cancers for which much remains unknown in terms...

Study to Compare Strategies to Improve Detection of Nutritional Disorders in Hospitalized Adults (Compass Project)

The prevalence of malnutrition in hospital is very high (30 percent) with major consequences in terms of morbidity and mortality, generating significant health care costs. The positive imp...

Companies [2486 Associated Companies listed on BioPortfolio]

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Biotechnology Industry Organization (BIO) and National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD), established in 1983, is the leading, independent nonprofit organization dedicated to helping all patients and families affecte...

National Organization for Rare Disorders (NORD)

Lundbeck Inc.

Lundbeck Inc. was established in March 2009 following the acquisition of Ovation Pharmaceuticals, Inc. by Lundbeck and has proven success in developing and commercializing high-ne...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "National Organization for Rare Disorders" on BioPortfolio

We have published hundreds of National Organization for Rare Disorders news stories on BioPortfolio along with dozens of National Organization for Rare Disorders Clinical Trials and PubMed Articles about National Organization for Rare Disorders for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of National Organization for Rare Disorders Companies in our database. You can also find out about relevant National Organization for Rare Disorders Drugs and Medications on this site too.

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