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Sturge-Weber Foundation Company Profile

12:17 EDT 22nd March 2019 | BioPortfolio

Since its founding in 1987, the Sturge-Weber Foundation (SWF) has provided information, education and friendly support to adults and families of children with Sturge-Weber syndrome, a neurological disorder characterized by a facial port wine birthmark and often seizures and glaucoma. In 1992, the SWF expanded its outreach to include Klippel-Trenaunay (KT), a vascular disorder involving a port wine birthmark on the body or a limb. The SWF has initiated and supported comprehensive clinical and basic research into the diagnosis and treatment of these conditions, and continues to collaborate, translate the research, and encourage all expectations to improve patient quality of life.


News Articles [436 Associated News Articles listed on BioPortfolio]

Ahmed valve implantation in childhood glaucoma associated with Sturge–Weber syndrome: our experience

Portrait: Manfred Weber - Ein Bayer greift nach dem EU-Topjob

Für einen CSU-Spitzenpolitiker ist Manfred Weber auffallend diplomatisch. So gut wie nie kommt dem 46-Jährigen in Brüssel oder München ein böses Wort über andere über die Lippen. Der Charakterz...

Frequency Chief Medical Officer Weber Jumps to Decibel Therapeutics

Peter Weber is now chief medical officer of Decibel Therapeutics, a Boston company developing treatments for hearing loss. Before joining Decibel, Weber was the chief medical officer of Frequency Ther...

Neurobehavioral symptoms predictive of employment outcome after traumatic brain injury

(Kessler Foundation) 'Our results indicate that frontal neurobehavioral symptoms may be predictive of the ability to achieve and maintain employment after TBI,' said Dr. Weber, lead author, and a rese...

Weber Highlights Potency of Adjuvant Nivolumab in Melanoma

Jeffrey S. Weber, MD, PhD, discusses the promise of nivolumab in this setting and a general overview of the melanoma treatment landscape.

Hy-Vee acquires Weber & Judd pharmacies in Minnesota

Emissionsbanken-Berater Christoph Moser: "IPO der Marinomed ist Meilenstein der jüngeren Kapitalmarktentwicklung in Österreich"

Die Anwaltssozietät Weber & Co. hat die Emissionsbanken beim IPO der Marinomed Biotech AG an der Wiener Börse beraten. Weber & Co-Partner Christoph Moser: "Das IPO der Marinomed ist ein Meilenstein....

The Ewing Marion Kauffman Foundation: Entrepreneurship and Success

In this interview, Lesa Mitchell, VP Kauffman Foundation, Ewing Marion Kauffman Foundation, talks to Dr Fintan Walton about: • the Foundation’s origins and its focus on entrepreneurship • its re...

Drugs and Medications [32 Associated Drugs and Medications listed on BioPortfolio]

Lyophilized pegaspargase [baxalta us inc.]

LYOPHILIZED PEGASPARGASE

No7 protect and perfect foundation sunscreen broad spectrum spf 15 calico [boots retail usa inc]

NA

Meloxicam [kaiser foundation hospitals]

These highlights do not include all the information needed to use MELOXICAM TABLETS USP. safely and effectively. See full prescribing information for MELOXICAM TABLETS USP. MELOXICAM Tablets USP, for ...

Benzonatate [kaiser foundation hospitals]

Benzonatate Capsules, USP 100 mg

Misoprostol [kaiser foundation hospitals]

Misoprostol Tablets 8204001/0613 Rx Only

PubMed Articles [228 Associated PubMed Articles listed on BioPortfolio]

Choroidal Hemangioma in a Black Patient With Sturge-Weber Syndrome: Challenges in Diagnosis.

A black teenager presented with long-standing vision loss in his right eye. Clinical exam revealed increased conjunctival vascularity and total exudative retinal detachment of the right eye. Ultrasoun...

Autism spectrum disorder, social communication difficulties, and developmental comorbidities in Sturge-Weber syndrome.

Sturge-Weber syndrome (SWS) is a neurocutaneous disorder characterized by the combination of a facial naevus flammeus and pial angioma, often associated with learning difficulties and/or epilepsy. Her...

Sturge-Weber Syndrome Coexisting With Moyamoya Disease in the Fifth Decade: A Case Report and Literature Review.

Sturge-Weber syndrome (SWS) is a sporadically occurring neurocutaneous syndrome characterized by port-wine stain over the face, ocular abnormalities (glaucoma and choroidal hemangioma), and leptomenin...

Oral healthcare management of a child with phakomatosis pigmentovascularis associated with bilateral Sturge-Weber syndrome.

The aim of this report was to describe an approach for a child with phakomatosis pigmentovascularis Type IIb associated with bilateral Sturge-Weber syndrome and autistic spectrum disorder. A 6-year-ol...

GNAQ Mutations in Diffuse and Solitary Choroidal Hemangiomas.

GNAQ mutations have been identified in port wine stains (both syndromic and non-syndromic) and melanocytic ocular neoplasms. This study investigates the presence of GNAQ mutations in diffuse- (those a...

Clinical Trials [316 Associated Clinical Trials listed on BioPortfolio]

Trial of Sirolimus for Cognitive Impairment in Sturge-Weber Syndrome

The purpose of this research study is to gain a preliminary understanding of the safety of sirolimus in Sturge-Weber syndrome (SWS) and determine best outcomes to be used to assess the uti...

Incidence of Ocular Antibodies in Patients With Sturge - Weber Syndrome (SWS)

Sturge-Weber Syndrome (SWS) is a neurological disorder characterized at birth by seizures and a large port-wine stain birthmark on the forehead and upper eyelid of one side of the face. S...

Use of the Atkins Diet for Children With Sturge Weber Syndrome

This research is being done to find out if the Atkins Diet can be used safely and effectively to reduce seizures in children who have Sturge Weber syndrome. The ketogenic diet is a proven...

Assessment of Weber Humeral Derotational Osteotomy Using CT Scan

Subjects who have had the Weber osteotomy for Hill-Sachs lesions will have CT of Both shoulders. Amount of rotation in operative shoulder will be compared to contralateral. QOL will be a...

Validating the Hum Test

The sensitivity and specificity of the Hum Test is being investigated in it's ability to detect conductive hearing loss. The hum test is simply elicited by asking the subject to hum to him...

Companies [1402 Associated Companies listed on BioPortfolio]

Sturge-Weber Foundation

Since its founding in 1987, the Sturge-Weber Foundation (SWF) has provided information, education and friendly support to adults and families of children with Sturge-Weber syndrom...

George Weber & Associates

George Weber & Associates is a well established, successful healthcare marketing practice based in Sydney, Australia. Its client base includes companies from the U.S. Australia, Hong Kong and Singapor...

Weber Shandwick

Weber Shandwick is one of the world's leading public relations and communications management firms. In 81 owned offices in 39 markets, and affiliates that expand our network to more than 119 offices ...

Fondation Franz Weber

Valley Presbyterian Hospital Foundation

Anthony “Tony” Tartaglia, Chairman of the Board, Southern California Gas CompanyKeven Steinberg, Vice Chairman of the Board, Steinberg LawMerryll McElwain, Treasurer, BN...

More Information about "Sturge-Weber Foundation" on BioPortfolio

We have published hundreds of Sturge-Weber Foundation news stories on BioPortfolio along with dozens of Sturge-Weber Foundation Clinical Trials and PubMed Articles about Sturge-Weber Foundation for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Sturge-Weber Foundation Companies in our database. You can also find out about relevant Sturge-Weber Foundation Drugs and Medications on this site too.

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