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Rare Disease Communications® Company Profile

03:08 EST 22nd January 2018 | BioPortfolio

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orphan drugs so that patients will be diagnosed and treated more efficiently. Rare Disease Communications® is part of the Michael J. Hennessy Associates, Inc. family of businesses, based in Cranbury, N.J. MJH Associates is dedicated to improving quality of life through healthcare education, research and communication. To learn more about MJH Associates, visit http://www.mjhassoc.com and for Rare Disease Communications, visit: www.raredr.com


News Articles [1822 Associated News Articles listed on BioPortfolio]

Rare Disease Report® to Cover Myelofibrosis Awareness Day

Myelofibrosis Awareness Day is part of Blood Cancer Awareness Month In recognition of Myelofibrosis Awareness Day on Sept. 20, Rare Disease Report® will provide continuous co...

Rare Disease Report® To Present Live Coverage of Paroxysmal Nocturnal Hemoglobinuria Awareness Week

Two out of every million people in the United States are currently affected by Paroxysmal Nocturnal Hemoglobinuria Rare Disease Report® (RDR), the digital component of Rare D...

Rare Disease Report® Highlights New Research Options for ALS

The article shares contributing factors and prevention methods Rare Disease Report®, the digital component of Rare Disease Communications®, recently shared an article writte...

32 Rare Disease Charities Will Board the Historic LeRoy King Carousel at First-Ever RARE ...

ALISO VIEJO, Calif., Jan. 3, 2018/PRNewswire-USNewswire/ --  Global Genes, a leading rare disease patient advocacy organization, and Festival of Children Foundationare Read more...

Arcturus, Ultragenyx ally in rare disease pact worth up to $1.6bn

RNA-focused start-up Arcturus Therapeutics Inc. (ATI) and fellow rare disease therapeutics developer Ultragenyx Pharmaceutical Inc. will collaborate on the discovery and development of messenger RNA (...

RNA Therapy for Rare Skin Disease Gets Orphan Status

The EMA has granted orphan drug designation to ProQR’s QR-313, a possible first disease-modifying treatment for the rare disease dystrophic epidermolysis bullosa. Dystrophic epidermolysis bullos...

Ionis to file rare disease drug after GSK declines option

Antisense drug specialist Ionis Pharmaceuticals has said it plans to market rare disease drug inotersen on its own after GlaxoSmithKline declined options on two rare disease drugs. GSK had options on...

#jobs #lifescience Rare Disease, Family Access Manager

Biotechnology, Pharma and Biopharma News – Research – Science – Lifescience ://Biotech-Biopharma-Pharma: Rare Disease, Family Access Manager .TX-Houston, The purpose of this position...

PubMed Articles [3900 Associated PubMed Articles listed on BioPortfolio]

An overview of the impact of rare disease characteristics on research methodology.

About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare ...

Research in Rare Disease: From Genomics to Proteomics.

Jessica Lacoste from the Donnelly Centre at the University of Toronto was awarded best poster at the annual Society of Biomolecular Imaging and Informatics meeting held in San Diego, September 2017. H...

Communications of the median nerve in fetuses.

Communications between the median, ulnar and musculocutaneous nerves in the arm, forearm and hand were reported in adult cadaveric and electrophysiological studies. These communicant branches may lead...

An extrapulmonary manifestation of lymphangioleiomyomatosis: A rare case report.

Lymphangioleiomyomatosis (LAM) is a rare and fatal disease which occurs almost exclusively in young women. The disease often affects lungs and most of the patients die from respiratory failure. It is ...

Computational drug repositioning for rare diseases in the era of precision medicine.

There are tremendous unmet needs in drug development for rare diseases. Computational drug repositioning is a promising approach and has been successfully applied to the development of treatments for ...

Clinical Trials [2998 Associated Clinical Trials listed on BioPortfolio]

Registration Study for Rare Type of Pulmonary Hypertension

Our knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators ai...

Multi-level Communications and Access Strategies to Improve the Food Environment

The overarching goal of B'More Healthy Retail Rewards (BHRR) is to develop, implement, and evaluate a pilot multi-level communications and pricing intervention to improve access to and con...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

Genomic Analysis of Peritoneal Mesothelioma by CGH Arrays

Peritoneal mesothelioma is a rare disease representing one third of all mesothelioma and nothing is known about molecular characteristics of this disease. As main cancers, genetic heteroge...

Finding Genes for Rare Diseases

This study will help the investigator understand the pathogenesis of different rare genetic conditions and to establish database of rare genetic databases. This would ultimately help to pr...

Companies [1548 Associated Companies listed on BioPortfolio]

Rare Disease Communications®

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orp...

Rare Disease Communications

Rare Disease Communications® is a healthcare communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orph...

Children's Rare Disease Network

The Children's Rare Disease Network (CDRN) is a non-profit advocacy group committed to connecting, educating and empowering the rare disease community, providing a link between families impacted by ra...

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "Rare Disease Communications®" on BioPortfolio

We have published hundreds of Rare Disease Communications® news stories on BioPortfolio along with dozens of Rare Disease Communications® Clinical Trials and PubMed Articles about Rare Disease Communications® for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Rare Disease Communications® Companies in our database. You can also find out about relevant Rare Disease Communications® Drugs and Medications on this site too.

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