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Rare Disease Communications® Company Profile

12:53 EDT 22nd July 2018 | BioPortfolio

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orphan drugs so that patients will be diagnosed and treated more efficiently. Rare Disease Communications® is part of the Michael J. Hennessy Associates, Inc. family of businesses, based in Cranbury, N.J. MJH Associates is dedicated to improving quality of life through healthcare education, research and communication. To learn more about MJH Associates, visit http://www.mjhassoc.com and for Rare Disease Communications, visit: www.raredr.com


News Articles [1809 Associated News Articles listed on BioPortfolio]

Rare Disease Report® to Cover Rare Disease Day

Over 25 million Americans are affected by rare diseases In recognition of Rare Disease Day on Feb. 28, Rare Disease Report®, the digital component of Rare Disease Comm...

Orphan medicine policies in 24 European countries

Drugs known as “orphan” drugs are those used to treat rare disease.  However, how “rare” is rare disease?  In Europe, a rare disease is one affecting 5 or fewer people per 10...

Regulators, industry recognize Rare Disease Day 2018

There are 434 rare disease studies listed on ClinicalTrials.gov as of today, the 11th international Rare Disease Day â the theme of which is research.

NIH researchers crack mystery behind rare bone disorder

(NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases) Researchers at the National Institutes of Health worked with 15 patients from around the world to uncover a genetic basis of...

#jobs #lifescience Director of Corporate Communications – Ph III Biopharma

Biotechnology, Pharma and Biopharma News – Research – Science – Lifescience ://Biotech-Biopharma-Pharma: Director of Corporate Communications – Ph III Biopharma .MA-Lexington, ...

Shire, Microsoft and EURORDIS form rare disease alliance

Rare disease specialist pharma firm Shire, rare disease patient alliance EURORDIS and tech giant Microsoft have announced they have formed a partnership focused on addressing diagnostic challenges wit...

Leading consultants from the North East putting rare diseases expertise on world stage

This Rare Disease Day (28 February), the Academic Health Science Network, is shining a spotlight on the region’s healthcare pioneers chosen to lead three major European rare disease networks.

Cambridge Rare Disease Summit 2017

Our friends at the Cambridge Rare Disease Network are holding their 3rd annual International Rare Disease Summit. The Network was co-founded by one of our Leaders of Tomorrow, Dr Tim Guilliams.

PubMed Articles [3892 Associated PubMed Articles listed on BioPortfolio]

An overview of the impact of rare disease characteristics on research methodology.

About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare ...

Research in Rare Disease: From Genomics to Proteomics.

Jessica Lacoste from the Donnelly Centre at the University of Toronto was awarded best poster at the annual Society of Biomolecular Imaging and Informatics meeting held in San Diego, September 2017. H...

Pancreatic cancer presenting as colonic disease. A rare case report.

Pancreatic cancer is the fourth major cause of cancer-related deaths. About 50% of the patients are diagnosed with advanced disease. Metastatic disease to the colon is a very rare entity with only 5 c...

Analysis of Genes Associated with Monogenic Primary Immunodeficiency Identifies Rare Variants in XIAP in Patients With Crohn's disease.

A few rare monogenic primary immunodeficiencies (PID) are characterized by chronic intestinal inflammation that resembles Crohn's disease (CD). We investigated whether 23 genes associated with 10 of t...

Characteristics of clinical trials in rare vs. common diseases: A register-based Latvian study.

Conducting clinical studies in small populations may be very challenging; therefore quality of clinical evidence may differ between rare and non-rare disease therapies.

Clinical Trials [3366 Associated Clinical Trials listed on BioPortfolio]

Registration Study for Rare Type of Pulmonary Hypertension

Our knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators ai...

Multi-level Communications and Access Strategies to Improve the Food Environment

The overarching goal of B'More Healthy Retail Rewards (BHRR) is to develop, implement, and evaluate a pilot multi-level communications and pricing intervention to improve access to and con...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

Genomic Analysis of Peritoneal Mesothelioma by CGH Arrays

Peritoneal mesothelioma is a rare disease representing one third of all mesothelioma and nothing is known about molecular characteristics of this disease. As main cancers, genetic heteroge...

Finding Genes for Rare Diseases

This study will help the investigator understand the pathogenesis of different rare genetic conditions and to establish database of rare genetic databases. This would ultimately help to pr...

Companies [1587 Associated Companies listed on BioPortfolio]

Rare Disease Communications®

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orp...

Rare Disease Communications

Rare Disease Communications® is a healthcare communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orph...

Children's Rare Disease Network

The Children's Rare Disease Network (CDRN) is a non-profit advocacy group committed to connecting, educating and empowering the rare disease community, providing a link between families impacted by ra...

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "Rare Disease Communications®" on BioPortfolio

We have published hundreds of Rare Disease Communications® news stories on BioPortfolio along with dozens of Rare Disease Communications® Clinical Trials and PubMed Articles about Rare Disease Communications® for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Rare Disease Communications® Companies in our database. You can also find out about relevant Rare Disease Communications® Drugs and Medications on this site too.

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Health care (or healthcare) is the diagnosis, treatment, and prevention of disease, illness, injury, and other physical and mental impairments in humans. Health care is delivered by practitioners in medicine, chiropractic, dentistry, nursing, pharmacy, a...


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