Advertisement

Topics

Rare Disease Communications® Company Profile

18:13 EST 20th November 2017 | BioPortfolio

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orphan drugs so that patients will be diagnosed and treated more efficiently. Rare Disease Communications® is part of the Michael J. Hennessy Associates, Inc. family of businesses, based in Cranbury, N.J. MJH Associates is dedicated to improving quality of life through healthcare education, research and communication. To learn more about MJH Associates, visit http://www.mjhassoc.com and for Rare Disease Communications, visit: www.raredr.com


News Articles [1631 Associated News Articles listed on BioPortfolio]

Rare Disease Report partners with 31 organizations

Rare Disease Report, the digital component of Rare Disease Communications, has added 31 organizations as part of the Strategic Alliance Partnership Program. Through this program, these medical instit...

Cambridge Rare Disease Summit 2017

Our friends at the Cambridge Rare Disease Network are holding their 3rd annual International Rare Disease Summit. The Network was co-founded by one of our Leaders of Tomorrow, Dr Tim Guilliams. The CR...

Rare Disease Report® to Cover Myelofibrosis Awareness Day

Myelofibrosis Awareness Day is part of Blood Cancer Awareness Month In recognition of Myelofibrosis Awareness Day on Sept. 20, Rare Disease Report® will provide continuous co...

Rare Disease Report® to Host Webinar Series on Neuromuscular Disease

The information will be presented by the renowned clinician scientist, Barry Byrne, M.D., Ph.D. Rare Disease Report®, the digital component of Rare Disease Comm...

Rare Disease Report® To Present Live Coverage of Paroxysmal Nocturnal Hemoglobinuria Awareness Week

Two out of every million people in the United States are currently affected by Paroxysmal Nocturnal Hemoglobinuria Rare Disease Report® (RDR), the digital component of Rare D...

Rare Disease Report® Highlights New Research Options for ALS

The article shares contributing factors and prevention methods Rare Disease Report®, the digital component of Rare Disease Communications®, recently shared an article writte...

Arcturus, Ultragenyx ally in rare disease pact worth up to $1.6bn

RNA-focused start-up Arcturus Therapeutics Inc. (ATI) and fellow rare disease therapeutics developer Ultragenyx Pharmaceutical Inc. will collaborate on the discovery and development of messenger RNA (...

Ionis to file rare disease drug after GSK declines option

Antisense drug specialist Ionis Pharmaceuticals has said it plans to market rare disease drug inotersen on its own after GlaxoSmithKline declined options on two rare disease drugs. GSK had options on...

PubMed Articles [3766 Associated PubMed Articles listed on BioPortfolio]

Communications of the median nerve in fetuses.

Communications between the median, ulnar and musculocutaneous nerves in the arm, forearm and hand were reported in adult cadaveric and electrophysiological studies. These communicant branches may lead...

An extrapulmonary manifestation of lymphangioleiomyomatosis: A rare case report.

Lymphangioleiomyomatosis (LAM) is a rare and fatal disease which occurs almost exclusively in young women. The disease often affects lungs and most of the patients die from respiratory failure. It is ...

Computational drug repositioning for rare diseases in the era of precision medicine.

There are tremendous unmet needs in drug development for rare diseases. Computational drug repositioning is a promising approach and has been successfully applied to the development of treatments for ...

Dissecting disease entities out of the broad spectrum of bipolar-disorders.

The etiopathology of bipolar disorders is yet unraveled and new avenues should be pursued. One such avenue may be based on the assumption that the bipolar broad spectrum includes, among others, an arr...

Changes in prescribing and healthcare resource utilization after FDA Drug Safety Communications involving zolpidem-containing medications.

Products containing the sedative/hypnotic zolpidem were subject to Drug Safety Communications (DSCs) in January and May 2013 describing the risk of next-morning impairment and recommending lower start...

Clinical Trials [2877 Associated Clinical Trials listed on BioPortfolio]

Registration Study for Rare Type of Pulmonary Hypertension

Our knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators ai...

Multi-level Communications and Access Strategies to Improve the Food Environment

The overarching goal of B'More Healthy Retail Rewards (BHRR) is to develop, implement, and evaluate a pilot multi-level communications and pricing intervention to improve access to and con...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

Genomic Analysis of Peritoneal Mesothelioma by CGH Arrays

Peritoneal mesothelioma is a rare disease representing one third of all mesothelioma and nothing is known about molecular characteristics of this disease. As main cancers, genetic heteroge...

Finding Genes for Rare Diseases

This study will help the investigator understand the pathogenesis of different rare genetic conditions and to establish database of rare genetic databases. This would ultimately help to pr...

Companies [1531 Associated Companies listed on BioPortfolio]

Rare Disease Communications®

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orp...

Rare Disease Communications

Rare Disease Communications® is a healthcare communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orph...

Children's Rare Disease Network

The Children's Rare Disease Network (CDRN) is a non-profit advocacy group committed to connecting, educating and empowering the rare disease community, providing a link between families impacted by ra...

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "Rare Disease Communications®" on BioPortfolio

We have published hundreds of Rare Disease Communications® news stories on BioPortfolio along with dozens of Rare Disease Communications® Clinical Trials and PubMed Articles about Rare Disease Communications® for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Rare Disease Communications® Companies in our database. You can also find out about relevant Rare Disease Communications® Drugs and Medications on this site too.

Quick Search
Advertisement
 

Relevant Topic

Healthcare
Health care (or healthcare) is the diagnosis, treatment, and prevention of disease, illness, injury, and other physical and mental impairments in humans. Health care is delivered by practitioners in medicine, chiropractic, dentistry, nursing, pharmacy, a...


Corporate Database Quicklinks



Searches Linking to this Company Record