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Rare Disease Communications® Company Profile

08:25 EDT 18th October 2018 | BioPortfolio

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orphan drugs so that patients will be diagnosed and treated more efficiently. Rare Disease Communications® is part of the Michael J. Hennessy Associates, Inc. family of businesses, based in Cranbury, N.J. MJH Associates is dedicated to improving quality of life through healthcare education, research and communication. To learn more about MJH Associates, visit http://www.mjhassoc.com and for Rare Disease Communications, visit: www.raredr.com


News Articles [1828 Associated News Articles listed on BioPortfolio]

Orphan medicine policies in 24 European countries

Drugs known as “orphan” drugs are those used to treat rare disease.  However, how “rare” is rare disease?  In Europe, a rare disease is one affecting 5 or fewer people per 10...

Balancing expectations: An unmet need in the orphan disease arena

There are between 6000 and 8000 rare diseases in the world, and one in ten people in Europe and the US have a rare disease; 75% of rare diseases affect children, and 30% of rare disease patients die b...

How Technology is Reshaping the Rare Disease Landscape

PRA has recently released a white paper about technology’s effects on rare disease research. Approximately 7,000 rare diseases affect an estimated 350 million people worldwide, and with diagnostic ...

#jobs #lifescience Director of Corporate Communications – Ph III Biopharma

Biotechnology, Pharma and Biopharma News – Research – Science – Lifescience ://Biotech-Biopharma-Pharma: Director of Corporate Communications – Ph III Biopharma .MA-Lexington, ...

NIH researchers crack mystery behind rare bone disorder

(NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases) Researchers at the National Institutes of Health worked with 15 patients from around the world to uncover a genetic basis of...

An Unwarranted Attack On Rare Disease Research

Hearing a parent agonize over the plight of their child who suffers from a rare disease is heart wrenching. For these families, research into rare disease drugs hasn’t come close to “reaching an e...

Alnylam rare disease drug may be delayed

Alnylam may have to put hold off plans for an early FDA approval for its gene-silencing drug givosiran – because recruitment to a rare disease trial is going better than expected. Rare disease tria...

Development of medicines for rare diseases

A disease is considered rare if fewer than five in 10,000 people have it. Around 30 million people in the European Union (EU) suffer from a debilitating rare disease, which means one in 17 people. Fin...

PubMed Articles [3843 Associated PubMed Articles listed on BioPortfolio]

Neonatal Behçet Disease.

Behçet's disease is a multi-system disease with inflammatory infestations, in particular of the small and middle arteries and veins. Histologically, the disease presents with the image of leukocytocl...

Recurrent intestinal ischemia related to Behçet's Disease.

Behçet's disease is a systemic inflammatory disease that may affect multiple organs. However, intraabdominal complications requiring surgical intervention are rare in the natural course of the diseas...

Ptosis and Mass Like Lesions in Behçet's Disease: A Rare Presentation.

In this article, we describe a case of neuro-Behçet's disease presenting with unilateral ptosis and facial paresis due to an intracranial mass lesion. A 25-year-old male patient with a history of Beh...

Characteristics of clinical trials in rare vs. common diseases: A register-based Latvian study.

Conducting clinical studies in small populations may be very challenging; therefore quality of clinical evidence may differ between rare and non-rare disease therapies.

Multiorgan involvement of Behçet's disease in a young woman.

Behçet's disease is a rare disorder of unknown etiology that is classified as a systemic vasculitis. The prevalence of the disease is high in countries in the Far East, Mediterranean Basin, and East ...

Clinical Trials [3560 Associated Clinical Trials listed on BioPortfolio]

Multi-center Clinical Study on the Diagnosis and Treatment Management of Rare Neurological Disease in Children

The incidence of rare diseases is extremely low, the disease is numerous, the symptoms are serious, and the detection technology is complicated. Countries have different definitions of rar...

Registration Study for Rare Type of Pulmonary Hypertension

Our knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators ai...

Multi-level Communications and Access Strategies to Improve the Food Environment

The overarching goal of B'More Healthy Retail Rewards (BHRR) is to develop, implement, and evaluate a pilot multi-level communications and pricing intervention to improve access to and con...

French National Registry of Rare Peritoneal Surface Malignancies

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patien...

Genomic Analysis of Peritoneal Mesothelioma by CGH Arrays

Peritoneal mesothelioma is a rare disease representing one third of all mesothelioma and nothing is known about molecular characteristics of this disease. As main cancers, genetic heteroge...

Companies [1616 Associated Companies listed on BioPortfolio]

Rare Disease Communications®

Rare Disease Communications® is a health care communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orp...

Rare Disease Communications

Rare Disease Communications® is a healthcare communications and media company focused on the rare disease community and dedicated to raising awareness of rare diseases and orph...

Children's Rare Disease Network

The Children's Rare Disease Network (CDRN) is a non-profit advocacy group committed to connecting, educating and empowering the rare disease community, providing a link between families impacted by ra...

National Organization for Rare Disorders

Mission StatementThe National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" di...

Global Genes

Global Genes is a non-profit organization that operates as one of the leading rare disease patient advocacy groups in the world. Global Genes promotes the needs of the Rare Diseas...

More Information about "Rare Disease Communications®" on BioPortfolio

We have published hundreds of Rare Disease Communications® news stories on BioPortfolio along with dozens of Rare Disease Communications® Clinical Trials and PubMed Articles about Rare Disease Communications® for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of Rare Disease Communications® Companies in our database. You can also find out about relevant Rare Disease Communications® Drugs and Medications on this site too.

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Health care (or healthcare) is the diagnosis, treatment, and prevention of disease, illness, injury, and other physical and mental impairments in humans. Health care is delivered by practitioners in medicine, chiropractic, dentistry, nursing, pharmacy, a...


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