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A Cure for Ellie Company Profile

21:15 EST 12th December 2019 | BioPortfolio

Founded in 2013, “A Cure for Ellie” is a non-profit organization dedicated to finding a cure for LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; most often developing in children, affecting their ability to walk, then even to stand and coordinate fine and gross motor skills. First identified in 2004, there are thought to be less than 100 known cases world-wide. The foundation also provides information and support to newly-diagnosed families and individuals living with the disease.


News Articles [441 Associated News Articles listed on BioPortfolio]

Ellie Goulding’s ex Dougie Poynter posts about ‘plastic rubbish’ as he promotes new book hours before her wedd – The Sun

Ellie Goulding's ex Dougie Poynter posts about ‘plastic rubbish' as he promotes new book hours before her wedd The SunEllie Goulding marries Caspar Jopling in York Minster BBC NewsAll the best pho...

Happy To Move For You… helping invisibly ill people access seats on public transport by Ellie Kime | 21 October 2019

Ellie's badges help people easily get a seat on public transport without needing to negotiate or feel anxious.

11-Year Old Disease Fighter Joins Global GivingTuesday With a Goal to Cure Rare Brain Disease

This GivingTuesday, 11-year old Ellie McGinn will celebrate giving by asking friends and followers to help her raise $350,000 to cure LBSL (Leukoencephalopathy with brainstem and spinal cord involvem...

CURE Natural Aqua Gel: Japanese Skincare with a Cult Following

LAS VEGAS (PRWEB) July 23, 2019 Cure Natural Aqua Gel is a water-based exfoliant from Japan that was first launched in 2003. Cure is...

The Cure at Glastonbury 2019 review – still the world’s most reluctant pop stars – The Guardian

The Cure at Glastonbury 2019 review – still the world's most reluctant pop stars The GuardianThe Cure review, Pyramid Stage, Glastonbury: Robert Smith lets 41 years of rocking speak for itself Tel...

Blog: No Easy Cure For Britain’s Brexit Madness

Prime Minister Boris Johnson has until 19 October to agree a deal, or otherwise must ask for another Brexit extension...   

A patient has complained about me online. What should I do?

“Maintain patient confidentiality”Ellie Mein, medicolegal adviser at the Medical Defence Union, says, “Unfortunately, online complaints are becoming increasingly common and can be upsetting. Fee...

Israeli cancer treatment co P-Cure raises $15m

P-Cure CEO: "Completion of the financing round will enable us to make the smart medical solution we have developed accessible to any oncological center that offers radiotherapy.

PubMed Articles [203 Associated PubMed Articles listed on BioPortfolio]

A cure for type 2 diabetes: fact or fiction?

In the world of type 2 diabetes, the word 'cure' generates strong negative feelings in some professionals working in the field, because they doubt the concept of a cure for this condition [1]. There i...

Major patterns of cancer cure: Clinical implications.

This review aimed to classify major patterns of cancer cure and discuss clinical implications. Patterns of cancer cure were identified, in terms of long-term survival and life expectancy, by means of ...

Prognosis and cure of long-term cancer survivors: A population-based estimation.

Increasing evidence of cure for some neoplasms has emerged in recent years. The study aimed to estimate population-based indicators of cancer cure.

Depth-dependence of Degree of Conversion and Microhardness for Dual-cure and Light-cure Composites.

The aim of this study was to evaluate the degree of conversion (DC) through micro-Raman spectroscopy and surface microhardness in Vickers hardness (VHN) of three new dual-cure bulk-fill resin-based co...

Improved Hepatitis C Cure Cascade Outcomes Among Urban Baby Boomers in the Direct-Acting Antiviral Era.

We compared outcomes of the hepatitis C virus (HCV) cure cascade (ie, the path a patient follows from diagnosis to cure), including antiviral treatment outcomes, from 2 HCV screening programs. Our obj...

Clinical Trials [701 Associated Clinical Trials listed on BioPortfolio]

Towards a Functional Cure for HBV - The COMMIT Cohort Study

Hepatitis B virus (HBV) infection can be treated, but therapy is usually lifelong and has side effects, so a cure for HBV is a critical endpoint. This study examines the key steps to HBV c...

C-Cure Clinical Trial

The purpose of this clinical trial is to evaluate the feasibility, safety and efficacy of left ventricular endocardial injection of guided bone marrow-derived cardiopoietic cells (C-Cure) ...

Treatment of BV With Donaxyl and a Molecular Test of Cure

. Treatment with dequalinium chloride vaginal tablets for 6 days had a cure rate lower than expected; only 37% of patients were considered cured one month after treatment.

The Clinical Cure Project of Chronic Hepatitis B in China

Chronic hepatitis B is a global public health problem, with nearly 700,000 deaths each year because of hepatitis B-related diseases. Recent studies have found that some patients who have u...

Way to Cure: Developing Effective Strategies to Promote Adherence to Hepatitis C Therapy Among Older Adults

This is a 3-arm, multi-center, patient-randomized, field evaluation of the "Way to Cure" behavioral interventions on medication adherence in HCV.

Companies [268 Associated Companies listed on BioPortfolio]

A Cure for Ellie

Founded in 2013, “A Cure for Ellie” is a non-profit organization dedicated to finding a cure for LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; m...

The Ellie Fund

Founded in 1994, The Ellie Fund is a Needham-based non-profit organization fighting breast cancer and easing its effects on patients and families across Massachusetts. For more information, visit www...

Standup for the Cure

Standup for the Cure is a Non-Profit Corporation formed in 2012 which raised more than $60,000 at its inaugural May event for the Orange County Affiliate of Susan G. Komen For The...

Accelerated Cure Project

Accelerated Cure Project for Multiple Sclerosis, www.acceleratedcure.org, is a national nonprofit organization dedicated to curing Multiple Sclerosis (MS) by determining its cause...

P‐Cure Ltd.

P‐Cure develops advanced solutions that help bring proton therapy to routine clinical practice. The P-Cure system provides an integrated solution with volumetric imaging, pat...

More Information about "A Cure for Ellie" on BioPortfolio

We have published hundreds of A Cure for Ellie news stories on BioPortfolio along with dozens of A Cure for Ellie Clinical Trials and PubMed Articles about A Cure for Ellie for you to read. In addition to the medical data, news and clinical trials, BioPortfolio also has a large collection of A Cure for Ellie Companies in our database. You can also find out about relevant A Cure for Ellie Drugs and Medications on this site too.

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Relevant Topics

Spinal Cord Disorders
The spinal cord is a bundle of nerves that runs down the middle of the back which carry signals back and forth between the body and brain. It is protected by vertebrae, which are the bone disks that make up the spine. An accident that damages the verte...

Pediatrics
Pediatrics is the general medicine of childhood. Because of the developmental processes (psychological and physical) of childhood, the involvement of parents, and the social management of conditions at home and at school, pediatrics is a specialty. With ...


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