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Patients as Partners is co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addresses the needs of all stakeholders seeking to implement and advance patient involvement across the entire clinical development continuum.
NEW YORK (PRWEB) February 15, 2018
The 5th annual Patients as Partners conference takes place next month in Philadelphia. Officially approved by Patients Included, the conference is the only program in the US that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research.
“The focus of this year’s program is on turning discussion into action,” said Kate Woda, Conference Director. “Each session will share the process behind the initiatives”.
Dr Roslyn Schneider, Pfizer Medical and co-chair welcomes attendees with a talk on the evolution of patients as partners, and what’s coming next. The opening keynote is cancer survivor and patient advocate, Stephanie Joho, who talks about her journey through immunotherapy. This follows with Tufts CSDD, Ken Getz with the results of the 2017 Perceptions and Insights study, which gathered responses from nearly 12,500 people worldwide.
FDA & Patient Advocacy
Stephanie Christopher of MDIC moderates a session on a new method for incorporating patient preference information into the statistical design for clinical trials. Panelists include Heather Benz and Anindita Saha of the FDA and Lauren McLaughlin and Margaret Sheehan from The Michael J Fox Foundation for Parkinson’s Research.
Patient Engagement Initiatives
Following the morning networking break, attendees can choose between two tracks of large pharma cases studies on applying patient engagement initiatives and demonstrating their impact:
More Track Choices
Attendees will have additional choices on tracks dedicated to treatment decisions, patient involvement early in R&D and data and metrics.
Afternoon panels are led by Dr Luther Clark of Merck on diversity and Christine Pierre, The Society for Clinical Research Sites on engaging patients at the site level. HealthiVibe’s Abbe Steel ends the day with a session on harnessing the expertise of patient opinion leaders.
Day two begins with David LeDuc of the Bonnie J Addario Lung Cancer Foundation, who discusses the Community Hospital Center of Excellence Program case study on engaging and educating communities on therapeutic treatment options. Dr Theresa Mullin of the FDA will provide a regulatory perspectives. Dr Roslyn Schneider talks about legal barriers and hold ups with Amy Comstock Rick, Food and Drug Law Institute, Louisa Daniels, Pfizer, and T.J. Sharpe, Patient Power.
Mark Boutin of the National Health Council leads a session on crossing the patient engagement adoption chasm. Joining him in this session are Suzanne Schrandt of the Arthritis Foundation and Dr Anne Beal of Sanofi. In the second panel discussion, The National Kidney Foundation and Achillion Pharma discuss their externally-led patient focused drug development (PFDD) meeting.
The morning concludes with Kyle Bryant, of Friedreich’s Ataxia Research Foundation and Robert Metz of Horizon Pharma discussing how they collaborated on aspects of clinical development and trial design to better understand patients living with the disease. Wrapping up the day, Kim McCleary of FasterCures presents the FasterCures report on how patient advocates engage industry. She then leads the final session of the conference, a panel discussion on advocacy/industry partnerships, with Jennifer Farmer of Friedreich’s Ataxia Research Foundation.
Patients as Partners provides special rates for patient advocacy and non-profits. To learn more, visit http://www.theconferenceforum.org
About the Conference Forum
The Conference Forum is a life science industry research firm which develops conferences primarily around how to get therapeutics to patients faster. They examine and challenge the complex ecosystem of drug development and delivery, bringing ideas together from a variety of sources to help advance clinical research with common goals that are patient-focused.
For the original version on PRWeb visit: http://www.prweb.com/releases/2018/02/prweb15209177.htmNEXT ARTICLE
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