Patients as Partners Announces Agenda Line Up for 2018

03:00 EST 15 Feb 2018 | PR Web

Patients as Partners is co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addresses the needs of all stakeholders seeking to implement and advance patient involvement across the entire clinical development continuum.

NEW YORK (PRWEB) February 15, 2018

The 5th annual Patients as Partners conference takes place next month in Philadelphia. Officially approved by Patients Included, the conference is the only program in the US that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research.

“The focus of this year’s program is on turning discussion into action,” said Kate Woda, Conference Director. “Each session will share the process behind the initiatives”.

Dr Roslyn Schneider, Pfizer Medical and co-chair welcomes attendees with a talk on the evolution of patients as partners, and what’s coming next. The opening keynote is cancer survivor and patient advocate, Stephanie Joho, who talks about her journey through immunotherapy. This follows with Tufts CSDD, Ken Getz with the results of the 2017 Perceptions and Insights study, which gathered responses from nearly 12,500 people worldwide.

FDA & Patient Advocacy

Stephanie Christopher of MDIC moderates a session on a new method for incorporating patient preference information into the statistical design for clinical trials. Panelists include Heather Benz and Anindita Saha of the FDA and Lauren McLaughlin and Margaret Sheehan from The Michael J Fox Foundation for Parkinson’s Research.

Patient Engagement Initiatives

Following the morning networking break, attendees can choose between two tracks of large pharma cases studies on applying patient engagement initiatives and demonstrating their impact:

Track A

  • How Tesaro is Integrating the Patient in the Clinical Development Process, with Beth Zaharoff, Tesaro
  • How Janssen is Creating Strategic Collaborations that are Driving Patient Centered Trials, with Katherine Capperella, Janssen Pharmaceuticals and Dr Bennett Levitan, Janssen R&D
  • How Takeda Used One or More of the Various Patient Engagement Frameworks Internally to Build Support and Cultural Shift for Patient Engagement, with Carol Meyer, Takeda Pharmaceuticals

Track B

  • How an Entire Large Pharma Team Incorporates Patients at Every Stage of Development, with Stephen Yates, UCB
  • Translating Patient Insight and Patient Experience Internally into Clinical Development Deliverables, with Mary Stober Murray, Bristol-Myers Squibb
  • How GSK Implemented Pivotal End-to-End Engagement Initiatives at Different Stages of Development, with Dr Marilyn Metcalf, GlaxoSmithKline

More Track Choices
Attendees will have additional choices on tracks dedicated to treatment decisions, patient involvement early in R&D and data and metrics.

Track A

  • Patient Perspectives Moderated by Dr Jen Horonjef, Savvy Cooperative, with Michael Mittelman, American Living Organ Donor Fund/Independence Blue Cross, Tanika Gray Valbrun, The White Dress Project, and Marie Recine, patient advocate
  • Involving Patients in Research and Early Clinical Development Phases, moderated by Jodie Gillon, Pfizer Innovative Health, with Jenny Ahlstrom, CrowdCare Foundation
  • How Patient Research Advocates Are Driving R&D with Geraldine Blavat, Parkinson’s Foundation Research Advocate and Karlin Schroeder, Parkinson’s Foundation

Track B

  • Engaging Patients by Giving Them Their Data! Moderated by David Leventhal, Pfizer, with Jenny Ahlstrom, CrowdCare Foundation, Kristina Figueroa, patient advocate, Cindy Geoghehan, cancer survivor and patient, and Therese Johnsen, Novartis
  • Town Hall Meeting on Patient Engagement Metrics and Value, moderated by Dr Bennett Levitan, Janssen R&D, with Ken Getz, Tufts CSDD and Dr Jen Mills, Genentech
  • Combining Valid Statistical Technology with Crowdsourcing for Better Insights, with Jean McCoy, Health Perspectives Group and Jo Anne Jensen, Health Perspectives Group

Afternoon panels are led by Dr Luther Clark of Merck on diversity and Christine Pierre, The Society for Clinical Research Sites on engaging patients at the site level. HealthiVibe’s Abbe Steel ends the day with a session on harnessing the expertise of patient opinion leaders.

Day two begins with David LeDuc of the Bonnie J Addario Lung Cancer Foundation, who discusses the Community Hospital Center of Excellence Program case study on engaging and educating communities on therapeutic treatment options. Dr Theresa Mullin of the FDA will provide a regulatory perspectives. Dr Roslyn Schneider talks about legal barriers and hold ups with Amy Comstock Rick, Food and Drug Law Institute, Louisa Daniels, Pfizer, and T.J. Sharpe, Patient Power.

Mark Boutin of the National Health Council leads a session on crossing the patient engagement adoption chasm. Joining him in this session are Suzanne Schrandt of the Arthritis Foundation and Dr Anne Beal of Sanofi. In the second panel discussion, The National Kidney Foundation and Achillion Pharma discuss their externally-led patient focused drug development (PFDD) meeting.

The morning concludes with Kyle Bryant, of Friedreich’s Ataxia Research Foundation and Robert Metz of Horizon Pharma discussing how they collaborated on aspects of clinical development and trial design to better understand patients living with the disease. Wrapping up the day, Kim McCleary of FasterCures presents the FasterCures report on how patient advocates engage industry. She then leads the final session of the conference, a panel discussion on advocacy/industry partnerships, with Jennifer Farmer of Friedreich’s Ataxia Research Foundation.

Patients as Partners provides special rates for patient advocacy and non-profits. To learn more, visit

About the Conference Forum

The Conference Forum is a life science industry research firm which develops conferences primarily around how to get therapeutics to patients faster. They examine and challenge the complex ecosystem of drug development and delivery, bringing ideas together from a variety of sources to help advance clinical research with common goals that are patient-focused.

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