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CLOVES Syndrome: Remarkable improvement in the health of 19 patients medical first

20:00 EDT 13 Jun 2018 | AAAS

(INSERM (Institut national de la santé et de la recherche médicale)) Dr Guillaume Canaud at the Necker-Enfants Malades Hospital AP-HP, the Paris Descartes University, Inserm and his team recently demonstrated the efficacy of a novel medication in a cohort of 19 patients suffering from CLOVES Syndrome (Congenital Lipomatous Overgrowth, Vascular Malformation, Epidermal Naevi) or similar disorders. This study, published in the journal Nature, is an example of precision medicine and demonstrates the major benefits of this therapeutic strategy for these patients, who have seen their health and quality of life improve significantly.

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