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A checklist for managed access programmes for reimbursement co-designed by Canadian patients and caregivers.

08:00 EDT 6th April 2018 | BioPortfolio

Summary of "A checklist for managed access programmes for reimbursement co-designed by Canadian patients and caregivers."

Reimbursement decisions on orphan drugs carry significant uncertainty, and as the amount increases, so does the risk of making a wrong decision, where harms outweigh benefits. Consequently, patients often face limited access to orphan drugs. Managed access programmes (MAPs) are a mechanism for managing risk while enabling access to potentially beneficial drugs. Patients and their caregivers have expressed support for these programmes and see patient input as critical to successful implementation. However, they have yet to be systematically involved in their design.

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This article was published in the following journal.

Name: Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
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