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Privacy of patient data in quality-of-care registries in cardiology and cardiothoracic surgery: The impact of the new General Data Protection Regulation EU-law.

08:00 EDT 30th July 2018 | BioPortfolio

Summary of "Privacy of patient data in quality-of-care registries in cardiology and cardiothoracic surgery: The impact of the new General Data Protection Regulation EU-law."

Quality-of-care registries have been shown to improve quality of healthcare and should be facilitated and encouraged. The data of these registries are also very valuable for medical data research.While fully acknowledging the importance of re-using already available data for research purposes, there are concerns about how the applicable privacy legislation is dealt with. These concerns are also articulated in the new European law on privacy, the 'General Data Protection Regulation' (GDPR) which has come into force on May 25th 2018.

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This article was published in the following journal.

Name: European heart journal. Quality of care & clinical outcomes
ISSN: 2058-1742
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