Association between health literacy, communication and psychological distress among myelodysplastic syndromes patients.

08:00 EDT 5th September 2018 | BioPortfolio

Summary of "Association between health literacy, communication and psychological distress among myelodysplastic syndromes patients."

MDS is a complex and potentially severe disease which can trigger psychological distress. A lack of information received and understood about MDS may also arouse feelings of distress. Low health literacy (HL) might play a role particularly among older patients. Our aim was to assess MDS-related distress and to study the factors associated with it, including medical and non-medical factors such as HL. A self-administered questionnaire was mailed to all members of French and Australian patients' national MDS associations. Data of 280 patients were analysed. A majority of patient (59.5%) reported low functional HL and 50% reported regular difficulties in asking physicians questions. Distress was not modified by gender, awareness of increased risk of developing leukaemia or MDS characteristics. French patients had a higher mean IES score (adjusted β = 5.9, p = 0.004) compared to Australian patients. Poor satisfaction with information provided about MDS, lower functional HL and difficulties in asking physician's questions were also independently associated with distress. MDS-related distress seems more related to HL and communication with physicians than to MDS characteristics. More efforts are needed to improve health literacy, tailor information for MDS patients and support them psychologically in order to improve their emotional well-being.


Journal Details

This article was published in the following journal.

Name: Leukemia research
ISSN: 1873-5835
Pages: 44-50


DeepDyve research library

PubMed Articles [24142 Associated PubMed Articles listed on BioPortfolio]

Psychological distress and completed suicide in Japan: A comparison of the impact of moderate and severe psychological distress.

It has already been established that severe psychological distress is a major risk factor for completed suicide. However, the impact (population attributable fraction; PAF) of moderate psychological d...

Suicide literacy predicts the provision of more appropriate support to people experiencing psychological distress.

Mental health literacy has been hailed as a public health priority to reduce stigma and increase help seeking. We examined the effect of suicide literacy on the type of help provided to those experien...

Depressive symptoms and psychological distress among rural African Americans: The role of material hardship and self-rated health.

Despite experiencing conditions associated with higher risk for depression and psychological distress, the mental health of rural African Americans remains understudied. This brief report examines the...

Health literacy and use of preventive health services among North Korean defectors in the Republic of Korea.

It is known that some groups of immigrants can have low health literacy and it may affect their health. Although the number of North Korean defectors in the Republic of Korea has increased, little is ...

Examining the Interrelations Among Objective and Subjective Health Literacy and Numeracy and Their Associations with Health Knowledge.

Health literacy and numeracy influence many health-related behaviors and outcomes. Health literacy and numeracy have been assessed objectively and subjectively, but interrelationships among the measur...

Clinical Trials [7302 Associated Clinical Trials listed on BioPortfolio]

Oral Health Literacy Tailored Communication

The purpose of this study to investigate attitude, oral health literacy and psychological factors in order to evaluate if these factors are important for oral health in adults. The hypoth...

COMFORT Caregiver Intervention in Improving Communication and Reducing Distress in Caregivers of Patients With Lung Cancer

This pilot clinical trial studies the COMFORT (C-Communication, O-Orientation and opportunity, M-Mindful presence, F-Family, O-Openings, R-Relating, and T-Team) caregiver intervention in i...

Health Literacy and Overweight in Adolescents

Obesity in children and adolescents has become a major public health problem in recent years. In Belgium, 20% of people aged between 2 and 17 are overweight and 7% suffer from obesity. Whi...

Reducing Assessment Barriers for Patients With Low Literacy

The purpose of this study is to determine the effects of health literacy on questionnaire-based measurement.

Communication During Medical Consultations in Singapore -Pilot

Despite advanced cancer patients and their caregivers frequently experiencing psychological distress and wanting to know about their prognosis, oncologists rarely respond with empathy and ...

Medical and Biotech [MESH] Definitions

Degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.

Voluntary organizations which support educational programs and research in psychiatry with the objective of the promotion of mental health. An early association in the United States was founded as the National Committee for Mental Hygiene in 1909, became the Mental Health Association in 1976 and later the National Mental Health Association in 1980. State and local mental health associations in this country are chartered by the national organization and affiliated with it.

System through which research and other scholarly writings are created, evaluated for quality, disseminated to the scholarly community, and preserved for future use. It includes both formal means of communication, such as publication in peer-reviewed journals, and informal channels, such as electronic listservs. (from Association of College & Research Libraries, “Principles and Strategies for the Reform of Scholarly Communication 1,” 2003)

The transfer of information from experts in the medical and public health fields to patients and the public. The study and use of communication strategies to inform and influence individual and community decisions that enhance health.

Experiential, attitudinal, emotional, or behavioral phenomena occurring during the course of treatment. They apply to the patient or therapist (i.e., nurse, doctor, etc.) individually or to their interaction. (American Psychological Association: Thesaurus of Psychological Index Terms, 1994)

Quick Search


DeepDyve research library

Searches Linking to this Article