Data linkages between patient-powered research networks and health plans: a foundation for collaborative research.

08:00 EDT 2nd April 2019 | BioPortfolio

Summary of "Data linkages between patient-powered research networks and health plans: a foundation for collaborative research."

Patient-powered research networks (PPRNs) are a valuable source of patient-generated information. Diagnosis code-based algorithms developed by PPRNs can be used to query health plans' claims data to identify patients for research opportunities. Our objective was to implement privacy-preserving record linkage processes between PPRN members' and health plan enrollees' data, compare linked and nonlinked members, and measure disease-specific confirmation rates for specific health conditions.


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This article was published in the following journal.

Name: Journal of the American Medical Informatics Association : JAMIA
ISSN: 1527-974X


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