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Provision of security and privacy to genomic data is a key issue in current genomic information representation. Existing formats do not give a solution to these issues (or they provide a partial one), so new solutions are demanded. MPEG-G (ISO/IEC 23092, Genomic Information Representation) is an International Standard for the representation of genomic information being defined by the MPEG Committee (Moving Pictures Expert Group, ISO/IEC JTC1 SC29/WG11). We provide flexible protection to the information stored inside the MPEG-G format with a combination of security techniques and privacy rules.
This article was published in the following journal.
Name: Studies in health technology and informatics
In recent times, the reduced cost of DNA sequencing has resulted in a plethora of genomic data that is being used to advance biomedical research and improve clinical procedures and healthcare delivery...
Patients and research participants have indicated that privacy of their genetic test results is an important concern, particularly with respect to insurance coverage. Internists and other physicians w...
The massive reach of social networks (SNs) has hidden their potential concerns, primarily those related to information privacy. Users increasingly rely on social networks for more than merely interact...
Concerns about genetic privacy affect individuals' willingness to accept genetic testing in clinical care and to participate in genomics research. To learn what is already known about these views, we ...
Next-generation sequencing produces large amounts of data. The complexity and data management issues associated with next-generation sequencing have led many laboratories to turn to cloud services, es...
This is a prospective open registry to measure the impact on first-line therapy of genomic testing of biopsy tissue from recently diagnosed treatment-naïve patients with early stage local...
Overall survival rates for patients with metastatic NSCLC are poor utilizing conventional cytotoxic chemotherapy approaches. However, a subset of patients harbor genomic driver mutations, ...
To be aware of oneself as a unique entity in the world occurs early in human development and is the prerequisite of normal social functioning. The disturbance of self representation charac...
Purpose: The purpose of this study is to evaluate the role of renal mass biopsy on decision-making for patients presenting with clinical T1 kidney tumors. This study also incorporates inte...
The goal of this registry study is create a database to learn if using FDA-approved and commercially available therapies off-label (meaning that the drugs are used for purposes other than ...
The privacy of information and its protection against unauthorized disclosure.
The systematic study of annotated genomic information to global protein expression in order to determine the relationship between genomic sequences and both expressed proteins and predicted protein sequences.
The protection of genetic information about an individual, family, or population group, from unauthorized disclosure.
Using certified ELECTRONIC HEALTH RECORDS technology to improve quality, safety, efficiency, and reduce HEALTHCARE DISPARITIES; engage patients and families in their health care; improve care coordination; improve population and public health; while maintaining privacy and security.
Creating a representation of areas of the earth or other celestial bodies, for the purpose of visualizing spatial distributions of various information.