Topics

Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study.

07:00 EST 8th November 2019 | BioPortfolio

Summary of "Parents' needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study."

Parents' needs of support following the loss of a child to cancer and whether these needs are met are not fully known. This study aimed to describe parents' needs, opportunity, and benefit of support from healthcare professionals and significant others from shortly after, up to five years after bereavement. Data were collected at nine months (T5,  = 20), eighteen months (T6,  = 37), and five years after the child's death (T7,  = 38). Parents answered questions via telephone about need, opportunity, and benefit of talking to psychologists, social workers, partners, and friends. Needs were examined in relation to parent and child characteristics, including sex, age, and parent posttraumatic stress symptoms (PTSS). The proportion reporting a need of support from psychologists varied from 56% and 46% at T5 to 20% and 6% at T7 (mothers and fathers, respectively). All mothers and 90% of fathers reported a need of support from social workers at T5. At T7, the corresponding percentages were 30% and 6%. More mothers than fathers reported a need of support from friends at T7 ( = .001). The proportion reporting a need of support from psychologists, social workers, and friends decreased over time (all  ≤ .050). Parents reporting a higher level of PTSS were more likely to report a need of support from social workers at T6 ( = .040) and from psychologists ( = .011) and social workers ( = .012) at T7. Opportunities for support from healthcare professionals varied, most reported need of and opportunity for support from significant others. Almost all reported benefit from received support. Bereaved parents need and benefit of support from healthcare professionals and significant others. Results show a need for improved access to psychosocial services, even at five years post bereavement. Large-scale studies are needed to better understand the associations between parent and child characteristics and support needs.

Affiliation

Journal Details

This article was published in the following journal.

Name: Acta oncologica (Stockholm, Sweden)
ISSN: 1651-226X
Pages: 1-7

Links

DeepDyve research library

PubMed Articles [25400 Associated PubMed Articles listed on BioPortfolio]

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents.

Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can cont...

Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study.

Parenting and providing extensive care to a child with a life-limiting or life-threatening disease while being aware of the future loss of the child are among the most stressful parental experiences. ...

Building on shared experiences: The evaluation of a phone-based parent-to-parent support program for helping parents with their child's substance misuse.

To evaluate the feasibility and acceptability of a phone-based parent-to-parent support program, in which parents who have had children with substance use problems provided support and guidance to oth...

'It's turned our world upside down': Support needs of parents of critically injured children during Emergency Department admission - A qualitative inquiry.

Childhood injury is the largest cause of paediatric hospitalisation in Australia. Parents' psychological wellbeing is important in enabling them to support their children's recovery, however little is...

Knowledge, Attitude and Practice of Child Sexual Abuse Prevention among Parents of Children with Hearing Loss: A Pilot Study in Beijing and Hebei Province, China.

This study aimed to examine the knowledge, attitude, and practice (KAP) of child sexual abuse (CSA) prevention among parents of children with hearing loss. The study involved 127 pairs of parents with...

Clinical Trials [19666 Associated Clinical Trials listed on BioPortfolio]

Understanding the Psychosocial Needs of Parents Who Have Lost a Child to Cancer

The purpose of this study is to understand the experiences and needs of parents who have lost a child to cancer. This will aid us in developing an intervention that may help parents cope w...

Parents of Newly Diagnosed Preschool Children With Autism Spectrum Disorder:

Manitoba parents of preschool children newly diagnosed with Autism must wait up to a year to receive government funded services for their child. During this delay parents need support and ...

How Familiy Coping With Child Cancer Affects Child's Quality of Life?

Children with newly diagnosed cancer and their parents will be contacted and invited to participate. Upon agreement, children will be interviewed, both parents will fill out questionnaires...

Improving Quality and Consistency in Family Education Prior to First Discharge Following Pediatric Cancer Diagnosis

When a child is diagnosed with cancer the family's world is turned upside down. Parents have high levels of stress because they must learn important information about their child's diagnos...

Enhancing Connections Program in Improving Family Adjustment in Patients With Incurable Cancer

This pilot clinical trial studies how well the Enhancing Connections program improves family adjustment in patients with incurable cancer. Participating in an educational program with a co...

Medical and Biotech [MESH] Definitions

Child with one or more parents afflicted by a physical or mental disorder.

Repeated physical injuries inflicted on the child by the parent, parents, or surrogate parent; often triggered by the child's minor and normal irritating behavior.

Child who has lost both parents through death or desertion.

Voluntary acceptance of a child of other parents to be as one's own child, usually with legal confirmation.

The child who is not wanted by one or both parents.

Quick Search


DeepDyve research library

Relevant Topics

Pediatrics
Pediatrics is the general medicine of childhood. Because of the developmental processes (psychological and physical) of childhood, the involvement of parents, and the social management of conditions at home and at school, pediatrics is a specialty. With ...

Cancer
  Bladder Cancer Brain Cancer Breast Cancer Cancer Cervical Cancer Colorectal Head & Neck Cancers Hodgkin Lymphoma Leukemia Lung Cancer Melanoma Myeloma Ovarian Cancer Pancreatic Cancer ...

Cancer Disease
Cancer is not just one disease but many diseases. There are more than 100 different types of cancer. Most cancers are named for the organ or type of cell in which they start - for example, cancer that begins in the colon is called colon cancer; cancer th...


Searches Linking to this Article