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Children have the Right to health, and countries a duty under the United Nations Convention on the Rights of the Child to facilitate this. The European Union has emphasised the importance of investing in children, but at times this seems more wish than pragmatism. Furthermore, European statistical systems do not provide any relevant data, and the degree of unmet need has hitherto been unknown. However, new ad hoc household survey data have now been published by Eurostat showing the percentage of children wi...
A growing literature base supports the use of tests developed in high-income countries to assess children in low resource settings when carefully translated, adapted, and applied. Evaluation of psychometric properties of adapted and translated measures within populations is necessary. The current project sought to evaluate the reliability and validity of an adapted and translated version of the Mullen Scales of Early Learning (AT-MSEL) in rural Guatelama.
Given the importance of families in supporting the health and developmental outcomes of young children, current recommended practices for early intervention services advocate for a family-centered practice (FCP) approach that recognizes the importance of children's family systems. Though there is consensus in the field on the importance of this approach, there often remains a disconnect between these values and the everyday practice of early intervention practitioners. This study focuses on understanding th...
Neonatal jaundice (NNJ) is common in sub-Saharan Africa (SSA), and it is associated with sepsis. Despite the high incidence, little has been documented about developmental impairments associated with NNJ in SSA. In particular, it is not clear if sepsis is associated with greater impairment following NNJ.
Idiopathic toe walking (ITW) is an exclusionary diagnosis resulting in a child walking on the balls of their feet. Preferred treatment options may be due to the severity of the toe or the health professional preference There are limited guidelines supporting consistent treatment recommendations for this condition. This research aimed was to understand agreement between health professionals' knowledge of evidence for common treatment strategies for idiopathic toe walking and if health professionals supported...
Background Healthcare professionals (HCPs), largely doctors, paediatricians, health visitors, midwives and practice nurses are in a good position to provide information, help, advice or guidance to parents for child sleep. However, evidence suggests there is a gap between the number of parents who desire assistance from HCPs and those that make use of these sources, yet very little is known about the reason for this apparent disparity. The aim of this study was to understand the barriers reported by parents...
To explore the views of children with cerebral palsy (CP) regarding their experiences being bullied and their perceptions of their primary bully.
Early childhood development (ECD) is a critical stage in children's lives, influencing future development and social integration. ECD research among children with disability and developmental delay in low- and middle-income countries is limited but crucial to inform planning and delivery of inclusive services. This study is the first to measure and compare the prevalence of disability and developmental delay among children attending pre-school centres in rural Malawi.
Childhood obesity is a global public health issue. Interventions to prevent the onset of obesity in the early years are often implemented in preschool settings. The ToyBox intervention was delivered across Europe and targeted energy-balance related behaviours in preschools and children's homes through teacher-led activities and parental education materials, and was adapted for use in Scotland. This study assessed the acceptability of the 18 week adapted intervention to both parents and teachers.
The prevalence of cerebral palsy (CP) in countries in Africa is suggested to be higher than in Western countries. Research in Western resource-rich contexts has demonstrated the importance of environmental factors in the activities and participation of individuals with CP, as illustrated by the International Classification of Functioning, Disability and Health (ICF). While the domains of the ICF are often acknowledged in research on CP in western contexts, the extent to which these domains have been explore...
Parental incarceration (PI) is associated with adverse developmental outcomes for children affected. However, research in this area often reports conflicting results with few studies following children across time in non-US populations. Additionally, more research is called for using multi-informant perspectives rather than relying on adult reports of child outcomes alone.
Children with medical complexity (CMC) have high care needs, often unmet by traditional healthcare models. In response to this need, the Complex Care Service (CCS) at The Royal Children's Hospital (RCH), Melbourne was created. While preliminary parent satisfaction data were available, we lacked knowledge of how the various components of the expanded service were valued and contributed to overall caregiver satisfaction.
This study aimed to assess the impact of phenylketonuria (PKU) and its treatment on parent and child health-related quality of life (HRQoL), and to identify the parenting-related correlates of parent and child HRQoL, as well as metabolic control.
Children and adolescents with neurodevelopmental disabilities may be less well integrated into their community than their peers. Online groups can be particularly accessible for individuals with neurodevelopmental disabilities, as individuals may be able to connect with a larger network than they would in their local community. This systematic review aimed at estimating the effectiveness of online peer mentorship programs on children and adolescent's participation in life situations.
There has been a recent, rapid increase in the number of studies of children with medical complexity (CMC) and their families. There is a need for attention to gaps and patterns in this emerging field of study.
Family Centered Care (FCC) is an approach to pediatric rehabilitation service delivery endorsing shared decision-making and effective communication with families. There is great need to understand how early intervention (EI) programs implement these processes, how EI caregivers perceive them, and how they relate to EI service use. Therefore, the purpose of this study is to examine 1) parent- and provider-perceptions about EI FCC processes and 2) the association between FCC perceptions and EI service intensi...
Different interventions are offered to children with cerebral palsy (CP) to improve the activity domain of the international classification of functioning (ICF). In therapy settings, the focus is mostly on motor capacity, but the ultimate goal is to improve motor performance. We therefore examined if changes in motor capacity outcomes are accompanied by changes in objectively measured motor performance after a three-month intensive treatment period in ambulatory children with CP.
Chinese immigrant mothers have been found to hold cultural-specific beliefs about children's weight and use cultural-specific feeding practices when feeding their children. However, current measurements of child feeding, including the widely-used Child Feeding Questionnaire (CFQ), do not capture these cultural-specific beliefs and practices. Thus, the present study examined the underlying factor structure of the original CFQ (7-factor model) and the modified CFQ with additional Asian cultural-specific feedi...
Children and young people with long term physical health conditions are at increased risk of experiencing mental health and wellbeing difficulties. However, there is a lack of research that explores the experiences of, and attitudes towards interventions aiming to improve their mental health and wellbeing. This systematic review seeks to address this gap in the literature by exploring what children and young people with long term conditions, their caregivers and health practitioners perceive to be important...
The aim of this study was to assess the feasibility and acceptability of a home-based intervention - 'Amagugu Asakhula' - to promote nurturing interactions and healthy behaviours with the caregivers of preschool children. Amagugu Asakhula means 'treasures that are still growing', and focuses on children's cognitive development, physical activity, screen time, diet and sleep, while also promoting the caregiver-child relationship.
As a means to provide safety for a population at great risk of harm through abandonment, every state in the United States now has laws and practices for the safe relinquishment of newborns and infants. However, there is no national database tracking the population of infants surrendered through such programs, and few states monitor these numbers. The primary aim of this study was therefore to examine the descriptive characteristics of infants who have been safely surrendered in a large, socio-economically d...
Although literature suggests that parents need support when their child is diagnosed with cerebral palsy (CP), it is unclear to what extent providers implement these supports in practice and what parental perspectives surround provider early diagnosis and management of CP. Therefore, we aimed to characterize and compare experiences of providers and parents of children with CP with regards to early detection and intervention.
Respiratory disease is a leading cause of hospitalizations and deaths in young people with cerebral palsy (CP). It is insidious and multifactorial. Clinical management can be complex. This systematic review describes effects of interventions for the prevention and management of respiratory disease in young people with CP.
The Ages & Stages Questionnaires (ASQ-3) is a parent-completed screening to identify young children at-risk for developmental delays in the United States and internationally. Federal programs operating on Navajo Nation use the ASQ-3 to determine the need for early intervention services, even though the ASQ-3 national sample used to establish cut-off scores for referral included only 1% Native American children.