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The Pre-Familial Amyotrophic Lateral Sclerosis (Pre-fALS) Study

2014-08-27 03:45:04 | BioPortfolio

Summary

We aim to recruit unaffected (healthy) people from families with a known genetic mutation in which at least two relatives have been affected with ALS. Our goal is to identify factors, both genetic and environmental, which put people at risk for developing ALS in the future.

Description

Healthy people from familial ALS families with a known genetic mutation will be included in this study. We encourage people who know that they carry the mutation that affects their family as well as those who do not know their genetic status to contact us. Those who wish to participate and to learn the results of genetic testing, may do so after undergoing genetic counseling. It is also possible to participate without learning the results of genetic testing. Participants in the study will travel to Emory (at our expense) on an annual basis.

Study Design

Observational Model: Cohort, Time Perspective: Prospective

Conditions

Amyotrophic Lateral Sclerosis

Location

Emory University
Atlanta
Georgia
United States
30322

Status

Recruiting

Source

Emory University

Results (where available)

View Results

Links

Published on BioPortfolio: 2014-08-27T03:45:04-0400

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