Investigating the Experience of Living With Down Syndrome and Obstructive Sleep Apnea Syndrome (Stage 1)

2019-10-18 11:21:47 | BioPortfolio


The primary objective of this study is to identify the perceptions, beliefs, and family-relevant outcomes regarding the treatment of OSAS with PAP in children with DS.


This is a multi-center outpatient study to be performed at two clinical sites: Children's Hospital of Philadelphia and Cincinnati Children's Hospital. Forty Caregivers of children with DS and OSAS treated with PAP and their children will be enrolled. The study comprises one 30-minute open-ended semi-structured interview per caregiver. The duration of the interview is approximate. It will last up to 30 minutes as some families may want to include more details.

Study Design


Down Syndrome


Open-ended semi-structured interviews


The Children's Hospital of Philadelphia
United States




Children's Hospital of Philadelphia

Results (where available)

View Results


Published on BioPortfolio: 2019-10-18T11:21:47-0400

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