Advertisement

Topics

Phenomenological Study of Psycho-Socio-Spiritual Healing in the Context of Chronic or Life-Threatening Illness

2014-07-24 14:07:20 | BioPortfolio

Summary

Background:

- A person's mental state, personal relationships, or spiritual well-being often change in many ways during or after cancer. Some of these changes can have a life-changing positive side, called psycho-socio-spiritual or PSS Healing. For example, a person may feel mentally stronger or more whole than before their cancer.

- Because researchers are interested in enhancing such experiences in other cancer patients, there is interest in developing a way to measure PSS Healing that would be helpful in understanding this phenomenon.

Objective:

- To determine and categorize the characteristics of PSS Healing, which could lead to development of a psychometric instrument to measure it.

Eligibility:

- Adults who have cancer or have had cancer that was diagnosed after the age of 18 and who have had at least one strong positive emotional or mental change in relation to the cancer (e.g., relationships with others, spiritual well-being or faith, thoughts about the meaning of life, reactions to stress).

Design:

- The study design does not involve any treatment or counseling.

- Participants will be interviewed by a research team member. The one-time interview will last up to 2.25 hours and will be audiotaped and transcribed.

- Interviews will consist of an in-depth portion to assess the positive changes in relation to the illness. Participants will then be asked to identify from a list of short descriptions the ones that best reflect their personal experience of PSS Healing.

- Transcribed information will be coded and categorized according to standard research techniques.

Description

Psycho-socio-spiritual healing (PSS Healing) in the context of chronic or life-threatening illness is a patient-reported outcome consisting of growth or benefit in psychological, social and/or spiritual dimensions representing improvement well above the patient's pre-morbidity baseline. This is a far more focused concept of healing than may be found elsewhere in the literature (e.g., Jonas 2004). This positive outcome often occurs despite substantial suffering during the illness, even in terminal cases (Kearney 2000). Qualitative descriptions of PSS Healing in previous phenomenological studies have not been structured in categories suitable for the development a fully validated and standardized psychometric instrument. Also, the relationship of PSS Healing to psychometrically measurable constructs such as posttraumatic growth, resilience, coping, and acceptance is not clear.

Objective: This program is to provide a taxonomy of PSS Healing that is structured in phenomenological categories suitable for the development a psychometric instrument to measure PSS Healing. (Note: this study doesn't target psychotherapeutic or relationship healing.)

Study populations: 30 subjects will be recruited for this research who have experienced (a) cancer, and (b) one or more substantial self-evaluated positive outcomes connected to illness along psychological, social and/or spiritual dimensions.

Design: This protocol of our PSS Healing research program has a qualitative, phenomenological, natural history design - similar to identifying features of a medical syndrome or psychological disorder. Individual subject interview sessions are the data source. Each subject's 2 1/4 hour session will have two distinct interview components: a 1-hour, in-depth phenomenological (natural history: the subject's positive outcomes, how they came about, and the circumstances around those positive outcomes) and 45-minute cognitive interview (how subjects processed healing-related questionnaire items, and their impressions and thoughts about the content area). Analysis of the in-depth phenomenological interview will utilize standard techniques of transcription, coding and categorization of qualitative interview data. External analysts will conduct checks against researcher bias. In the questionnaire-cognitive interview standardized subject-reported outcome measures of psychological, social and spiritual factors will be administered: positive questionnaire items selected from the CaPS (Cancer PROMIS Supplement) item bank of the NIH PROMIS network (Patient-Reported Outcomes Measurement Information System(Trademark)).

Outcome measures: This research protocol is non-interventional: no treatment outcome. This study's output will be (a) a phenomenological model (or taxonomy) of PSS Healing, and (b) an initial assessment of CaPS questionnaire items relevance to PSS Healing (current CaPS questionnaire items were not designed to capture PSS Healing). This research is a first step toward PROMIS-based measures of PSS Healing, and better therapeutic modalities.

Study Design

Time Perspective: Retrospective

Conditions

Cancer

Location

National Institutes of Health Clinical Center, 9000 Rockville Pike
Bethesda
Maryland
United States
20892

Status

Recruiting

Source

National Institutes of Health Clinical Center (CC)

Results (where available)

View Results

Links

Published on BioPortfolio: 2014-07-24T14:07:20-0400

Clinical Trials [0 Results]

None

PubMed Articles [13163 Associated PubMed Articles listed on BioPortfolio]

Cancer screening in the United States, 2018: A review of current American Cancer Society guidelines and current issues in cancer screening.

Each year, the American Cancer Society publishes a summary of its guidelines for early cancer detection, data and trends in cancer screening rates from the National Health Interview Survey, and select...

Behavioral Counseling to Prevent Skin Cancer: US Preventive Services Task Force Recommendation Statement.

Skin cancer is the most common type of cancer in the United States. Although invasive melanoma accounts for only 2% of all skin cancer cases, it is responsible for 80% of skin cancer deaths. Basal and...

Patterns, perceptions, and perceived barriers to physical activity in adult cancer survivors.

Physical activity (PA) during and after cancer treatment is associated with improved cancer- and non-cancer-related outcomes. We assessed for predictors of change in PA levels among cancer survivors.

Non-participation in breast cancer screening among previous cancer patients.

Breast cancer can be detected at early stages through organised screening. This study explored reasons for non-participation in breast cancer screening among previous cancer patients, who have high ri...

When Ovarian Cancer Is Not: Characterizing Nonovarian Cancer Pathology in a Laparoscopy-Based Triage System.

Establishing an accurate histologic diagnosis is essential for determining the appropriate course of therapy for ovarian cancer. This study sought to investigate and describe nonovarian cancer patholo...

Medical and Biotech [MESH] Definitions

A cancer registry mandated under the National Cancer Act of 1971 to operate and maintain a population-based cancer reporting system, reporting periodically estimates of cancer incidence and mortality in the United States. The Surveillance, Epidemiology, and End Results (SEER) Program is a continuing project of the National Cancer Institute of the National Institutes of Health. Among its goals, in addition to assembling and reporting cancer statistics, are the monitoring of annual cancer incident trends and the promoting of studies designed to identify factors amenable to cancer control interventions. (From National Cancer Institute, NIH Publication No. 91-3074, October 1990)

A deoxycytidine derivative and fluorouracil PRODRUG that is used as an ANTINEOPLASTIC ANTIMETABOLITE in the treatment of COLON CANCER; BREAST CANCER and GASTRIC CANCER.

That portion of the stomach remaining after gastric surgery, usually gastrectomy or gastroenterostomy for cancer of the stomach or peptic ulcer. It is a common site of cancer referred to as stump cancer or carcinoma of the gastric stump.

A voluntary organization concerned with the prevention and treatment of cancer through education and research.

A hereditary disease characterized by multiple ectodermal, mesodermal, and endodermal nevoid and neoplastic anomalies. Facial trichilemmomas and papillomatous papules of the oral mucosa are the most characteristic lesions. Individuals with this syndrome have a high risk of BREAST CANCER; THYROID CANCER; and ENDOMETRIAL CANCER. This syndrome is associated with mutations in the gene for PTEN PHOSPHATASE.

More From BioPortfolio on "Phenomenological Study of Psycho-Socio-Spiritual Healing in the Context of Chronic or Life-Threatening Illness"

Advertisement
Quick Search
Advertisement
Advertisement

 

Relevant Topics

Head and neck cancers
Cancer can occur in any of the tissues or organs in the head and neck. There are over 30 different places that cancer can develop in the head and neck area. Mouth cancers (oral cancers)  - Mouth cancer can develop on the lip, the tongue, the floor...

Cancer Disease
Cancer is not just one disease but many diseases. There are more than 100 different types of cancer. Most cancers are named for the organ or type of cell in which they start - for example, cancer that begins in the colon is called colon cancer; cancer th...

Cancer
  Bladder Cancer Brain Cancer Breast Cancer Cancer Cervical Cancer Colorectal Head & Neck Cancers Hodgkin Lymphoma Leukemia Lung Cancer Melanoma Myeloma Ovarian Cancer Pancreatic Cancer ...


Searches Linking to this Trial